Second Opinions

[Shelley FradyParticipant]

My mom was diagnosed with very high risk MDS. I mentioned the Centers of Excellence to her and today she mentioned she may want to make an appointment at either Vanderbilt or Emory.

From what I have read there isn’t many options of treatment and Vidaza seems to actually be the only one I am seeing. She doesn’t qualify for bone marrow transplant due to other health issues.

Not trying to sound negative but what would be the benefit of a second opinion?

[Karen WarwickParticipant]

I’m looking for anyone who had a parasitic lymes disease infection….prior to the onset of MDS…you may want to find out what else could be causing the symptoms. I think I read a second BMB would be done. Something in bone Morrow needs to be fluid. If its dry sample they may not get an accurate result.

[Author]

Posts