MDS is a bone marrow failure disorder
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Second Opinions

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This topic contains 1 reply, has 2 voices, and was last updated by  Karen Warwick 5 months, 3 weeks ago.

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  • #44580

    Shelley Frady
    Participant

    My mom was diagnosed with very high risk MDS. I mentioned the Centers of Excellence to her and today she mentioned she may want to make an appointment at either Vanderbilt or Emory.

    From what I have read there isn’t many options of treatment and Vidaza seems to actually be the only one I am seeing. She doesn’t qualify for bone marrow transplant due to other health issues.

    Not trying to sound negative but what would be the benefit of a second opinion?

    #44587

    Karen Warwick
    Participant

    I’m looking for anyone who had a parasitic lymes disease infection….prior to the onset of MDS…you may want to find out what else could be causing the symptoms. I think I read a second BMB would be done. Something in bone Morrow needs to be fluid. If its dry sample they may not get an accurate result.

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