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signs of transition to AML?

HomeForumsPatient Message Boardsigns of transition to AML?

This topic contains 2 replies, has 3 voices, and was last updated by  mdsfound 2 months, 3 weeks ago.

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  • Author
    Posts
  • #36471

    Marilyn Satterfield
    Participant

    I have had three rounds Vidaza with no improvement in any of my three blood counts. I am feeling very weak, dizzy, short of breath, and just generally ill. I had CBC done yesterday and my hemoglobin was holding at 8.4 after last transfusion. White count is 1.4 platelets have plunged to 24 in a couple of weeks. I am wondering if I have transitioned to AML. Usually I feel like this when hemoglobin gets really low. Could low platelets make me feel lousy, too?

    #36540

    Airin Kenari
    Participant

    Hai Marilyn
    My father was diagnose with MDS last year, so maybe i can share some information for you. I dont think that condition mean that MDS become AML, u have to do bone marrow to make sure. But that wouldnt nessesary cause MDS itself will show that kind of symptoms. Low platelets will not make u feel lousy, it can cause purpura/blood rash in your skins & internal bleeding. The lousy feeling is cause by low hemoglobin which cause blood can not carry oxygen to flow into the body’s nerves.
    Be patiance Marilyn, I pray you can get well soon

    #36550

    mdsfound
    Moderator

    Dear Marilyn, A sign of transgressing from MDS to AML would be the rise in your blast count (immature white blood cells). An increase to 20% would mean AML while 19% is still MDS.

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