I have had difficulty in logging in, so this is a little late.
As a “lurker” over the years I have read much on this site but have not contributed a great deal, however I wish to add my thoughts relating to Neil and the impact he had on those he touched.
When my husband was diagnosed in 2002 with MDS
and given six months to live, Neil offered hope where there was only despair, insight and understanding when medical information only confused and most of all he offered us a large, caring family who would support us and all others on this site.
Sadly over the 5 plus years since then, I have witnessed so many wonderful people in their battle with this disease, many of whom did not make it. I remember the names and details as if they were my immediate family, but more importantly I do remember those who have battled the odds and continue to contribute to this site, Suzanne, Jimbob and Frank to name just a few. We all owe a tremendous debt of gratitude to Neil for his unstinting effort in helping so many of us.
As an aside, my husband, now 72 is “alive and kicking” counts have dropped only minimally, is on no treatment and he puts in a full day’s work(or more) each day, so, my message along with that of Neil is to have faith and take each day as it comes, NO prognosis is written in stone.
May he rest in peace and may his family be comforted to know just how much he helped so many of us.
Shalom
Ani
.
