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some good news….yeah!

This topic has 17 replies, 1 voice, and was last updated 19 years, 3 months ago by KATHY1.

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January 11, 2005 at 9:23 pm #3100

shirlsgirl
Member

Hi everyone,

Just wanted to share a little good news. My mom’s platelet count as of yesterday is now 220 000! An actual normal level! It’s been a long time….was so happy I just had to share it with all of you. I guess the cyclosporin is starting to kick in!

Jody

January 11, 2005 at 9:32 pm #3101

April
Member

That is wonderful Jody!!! Your mom must be relieved and happy!!! Sounds like the meds are working..good for her!

January 11, 2005 at 9:53 pm #3102

Carrie
Member

Yay for your mom!!!!!!

January 11, 2005 at 10:35 pm #3103

Jack_dup1
Member

Jody,
Glad to hear her platelets are up, that’s a great count. How are her wbc’s and rbc’s?
It’s nice to hear good news.
Jack

January 11, 2005 at 11:33 pm #3104

Donna
Member

Awesome news Jody!
You all must be very happy.

Donna

January 11, 2005 at 11:51 pm #3105

Suzanne
Member

fantastic! Hope goood things are ahead!

January 12, 2005 at 5:13 am #3106

shirlsgirl
Member

Thanks everyone!

Hi Jack, thanks for asking. Her wbc’s are 13.9 ( have been between 12 and 19 for the past couple of months)and I’m not sure about her rbc’s but her hgb is 141. How are you doing? I noticed that you are not treating, are you a candidate for SCT? I remember from an earlier post that you were going to do a clinical trial next month…was it Gleevac?

take care, Jody

January 12, 2005 at 6:53 am #3107

geebeebee
Member

Great news, Jody. I hope it keeps coming…

Greg

January 12, 2005 at 7:47 am #3108

Andrea
Member

Thats great, Jody. What is the difference between early CMML and CMML itself? My mom was diagnosed in December with CMML. Had her first month of Vidaza, her counts are now pretty good, but I don’t have numbers, Yet. I’m going to call the doc, tomorrow

Best to you and your mom,

Andrea

January 12, 2005 at 11:31 am #3109

mommachkate
Member

Hi Jody, Wonderfull news, so happy for your Mom and you.Best of luck with the rest of her treatment. Kate

January 12, 2005 at 3:37 pm #3110

shirlsgirl
Member

Hi Andrea,

I should probably update her dx to CMML. When she was first diagnosed her monocytes were not yet above 1 x10 9 and her wbc’s were normal. Her cbc looked completely normal except for low platelets. However, now her monocytes are at 3.9 x 10 9 and her wbc’s are elevated.

I’m glad your mom is doing well on the Vidaza. Hope she is feeling well. Take care, Jody

January 12, 2005 at 9:07 pm #3111

Jack_dup1
Member

Hi Jody,
I was on Gleevac for 6 weeks with no change in numbers. At this point they say I am to healthy for SCT, my sister is a perfect match. My mono’s are climbing, they are at 5100. Local Hemo says it’s time to think about Vidaza, Cen. of Excell. hemo says to wait. My WBC is 23, plt 118,000, rbc normal. I feel good, just tire easily.
Regards
Jack

January 12, 2005 at 9:44 pm #3112

B. Greene
Member

Yeah. We all are so happy to hear good news. Barbra

January 12, 2005 at 11:31 pm #3113

Terri
Member

That is great news, Hope it continues

January 13, 2005 at 3:58 am #3114

KATHY1
Member

Woo Hoo! Let’s keep the good news coming!

Kathy
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