MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Starting Revlimid

Home forums Patient Message Board Starting Revlimid

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • #49973
    Diane Logan
    Participant

    On Vidaza for 10 months, then stopped working. Now goung to start Revlimid. Feeling fine but 15% blasts and lots of chromosome mutations. Hope others out there have had success with Revlimid.

    #49976
    wendi thomas
    Participant

    My husband was diagnosed 7 years ago with low risk MDS. He was given Vidaza and it worked for a few months only. He received transfusions for years and was able to maintain a quality life until 2 years ago. His transfusions got more frequent and then he went on Revlimid and it was a miracle drug for him. He was able to tolerate it and had no transfusions for over 2 years. His HMG stayed between 11 and 12. He does not have 5Q deletion but yet the drug worked good. I hope the drug works for you.

    #49977
    Carl Schneller
    Participant

    I’m 82 year old male. Was diagnosed with MDS July 2018. 5Q and 7Q deletions. Tried Procrit for 9 months with no help. Had 3 blood transfusions and then went on revlimid 10 mg for 5 weeks and got bad rash so stopped for 2 weeks and then tried 5mg. rash came back and stopped again. During time taking Revlimid my hemoglobin went up into 11.0 plus and has stayed there. Revlimid has helped me and don’t know what to do if my hemoglobin drops to low again.

Viewing 3 posts - 1 through 3 (of 3 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert