Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Stem Cell Transplant

Tagged: stem cell transplant

This topic has 8 replies, 6 voices, and was last updated 4 years, 6 months ago by Wendy Aaronson.

Viewing 9 posts - 1 through 9 (of 9 total)

Author

Posts
September 16, 2019 at 11:43 pm #49049

Cammie Vogel
Participant

Hi, I’m reaching out for my dad. He needs a stem cell transplant soon and they found a 10/10 match. He is trying to make his decision and really wants to speak to someone who has been through the transplant. Anyone out there that’s been through it, I would greatly appreciate if I could connect you with him, it’s crucial to him making his decision. He can’t seem to get connected with anyone. He would get the transplant at City of Hope, if someone had a transplant there, it would be a huge bonus.

September 17, 2019 at 3:35 am #49050

Dale Frank
Participant

Cammie,

I was at City of Hope considering a stem cell transplant and they gave me a 140 page book, “A Patient’s Guide to Blood and Marrow Stem Cell Transplantation” written by a successful transplant patient. The book details his journey. I found it helpful. I also read and enjoyed “Everybody’s Got Something” by ABC news anchor Robin Roberts, who had a transplant in 2012-2013.

Hope this helps.

September 18, 2019 at 9:43 pm #49058

jeffs12340
Participant

Hi there Cammie,

I had an allogeneic stem cell transplant Sept 2018. Happy to share anything I can. Let me know

Jeremy

September 18, 2019 at 11:00 pm #49059

Cammie Vogel
Participant

Hi Jeff,

Thank you so much for your response, that would be amazing if you could speak to him. Would you mind giving him a call? His number is 310-600-0314.

Thanks again!
Cammie

September 19, 2019 at 1:06 am #49060

jeffs12340
Participant

He can call me 714-594-9532 when it’s a good time for him

October 1, 2019 at 6:58 pm #49116

Kathie Wolf
Participant

My husband, age 73, is being referred to Stanford for a consultation for a bone marrow transplant. Jeff, could he call you also?

October 1, 2019 at 7:00 pm #49117

jeffs12340
Participant

Hi Kathy,

Of course any time, my # is 714-594-9532

October 2, 2019 at 4:13 pm #49119

PATRICK CAMMARANO
Participant

Cammie : You might want to read in this forum posted by Rose Eden Guanzon Dated April 4, 2019 titled Transplant Diary. It is worth reading.

October 3, 2019 at 4:12 pm #49131

Wendy Aaronson
Participant

My husband is in the hospital starting his transplant. Very scary, but the only cure.
We are at Sylvester in Miami. My stomach is in knots but I’m trying to be positive.
Author

Posts