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Stem Cell Transplant

Tagged: high-risk, MDS EB-1, stem cell transplant

This topic has 2 replies, 3 voices, and was last updated 4 days, 5 hours ago by stacey.

Viewing 3 posts - 1 through 3 (of 3 total)

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September 4, 2024 at 9:13 pm #67781

Kelly McGuire
Participant

Hello,

My 65 year old husband was recently diagnosed with high-risk MDS, EB-1. We are on day 10 of the first 28 day cycle of Inqovi, 5 days on, 23 off. Luckily there were no side effects.

Upon diagnosis the doctor said that he would need a stem cell transplant. We meet with that team in two weeks.

I’m looking to speak with people who have had experience with the transplant. Thank you in advance.

Kelly

September 14, 2024 at 11:14 am #67794

Jean Ira
Participant

Hello Kelly,
We don’t have experience with a stem cell transplant, but if you have access to Facebook, the group
Fight Myelodysplastic Syndrome
should be very helpful to you.
Jean

September 16, 2024 at 3:36 pm #67795

stacey
Participant

Kelly,

Here is my gmail account if you and your husband would like to contact me: staceyestey63@gmail.com

-Stacey
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