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Stopping Vidaza

Home Demo forums Patient Message Board Stopping Vidaza

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #48794
    Aureta
    Participant

    My MDS involves hemoglobin only. Have been on Vidaza for 6 months n this past month hemoglobin went from 7.6 to 9.7 in three weeks. My doctor wants me to stop taking Vidaza n just have labs done every couple of weeks to monitor me. I am a little concerned about going off drug since I have not read where u could go off treatment n if labs go down go back on. Has anyone else went off Vidaza because they were doing better?

    #52394
    Kathie Wolf
    Participant

    Aureta, how did this work out for you? My hubby has been on Vidaza for 12 months, labs are all normal,and he is in remission. His oncologist is offering him a vacation and just follow with labs. She has told him he can do,either, no wrong answer…

    #52446
    aiqueen
    Participant

    I was on Vidaza since last December. For the last 2 cycles ( June, July), all my lab numbers have
    been normal. I asked the doctor if I could discontinue treatment or on a less frequent schedule ( perhaps 5-6 weeks instead of 4 weeks). He said it would run the risk of a relapse and continual treatment would lengthen the remission. I do not know what to do? Should I ask a second opinion ? Has anyone discontinue treatment after remission and is OK?

    #52447
    Richard Lin
    Participant

    Would definitely encourage a second opinion. Most people in remission after Vidaza would be considered for transplant which is the only curative modality unless not a transplant candidate.

    #52524
    aiqueen
    Participant

    Thanks for the advice. I was not considered a transplant candidate because there is no match in the repository. My sister is only 50% match and lives in another state. The doctor said that I have no social support.(?)

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