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Survey: How many MDS patients on high blood pressure meds

Home forums Patient Message Board Survey: How many MDS patients on high blood pressure meds

This topic contains 4 replies, has 4 voices, and was last updated by  Pat Lawson 1 week, 3 days ago.

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #48666

    Sally Smith
    Participant

    My sister has just been diagnosed with MDS. She never smoked, drank or had long term exposure to anything that might cause MDS. The only thing she equates it to is she just turned 70. She has been taking Amlodipine, NORVASC, a calcium channel blocker, for years for her high blood pressure. In researching the side effects (of which there are many), I found the rare and severe side effects of: Decreased Blood Platelets, Decreased White Blood Cells. I am not a scientist or researcher but I am curious to know whether there are other MDS patients out there who were taking a calcium channel blocker, or any other high blood pressure meds for a long period of time before diagnosis. Below is the link to NORVASC detailed side effect list. It’s right there in black and white. I hope you might be willing to share. Thank you and I wish all of you the best of outcomes.

    https://www.webmd.com/drugs/2/drug-5942/norvasc-oral/details/list-sideeffects?fbclid=IwAR1080YOsgqdbK_iygkmbppOTyKtI4iyuulua74I3qCcTMfNUu3QlFNMDcE

    #48668

    Nancee Noble
    Participant

    I am 82yr old, was diagnosed two years ago with High Risk MDS. I have been taking Amlodipine for many years for high blood pressure. The difference that I see is that I have increased WBC. Hgb 8.9 WBC 39 RBC 3.28 platelets 28 ( have been as low as 18) Hope this helps. Prayers.

    #48670

    Pat Lawson
    Participant

    Hi Sally,

    My husband was diagnosed with high risk MDS back in October and I put a similar post out asking if anyone thought that the blood pressure meds might be connected to this disease. My husband has been on Norvasc and Amlodipine for years and he is currently still taking Amlodipine. When he was in the hospital just prior to diagnosis (he only had 4 pints of blood left in his body at the time) the cardiologist thought there might be a connection with all the blood pressure meds he was on and stopped the Norvasc and had him stay on the Amlodipine for his high blood pressure.

    #48671

    Rita Knopick
    Participant

    Hi Sally,

    My husband has high risk MDS and has been on Amlodipine for 20 years. He also had radiation for prostate cancer and chemo for bladder cancer so they attribute his to that. Very interesting though.

    #48676

    Pat Lawson
    Participant

    Sally,
    I need to correct my original post. My husband was on Lisiniprol and Amlodipine for years and the cardiologist at the hospital stopped the Lisiniprol and had him continue to take Amlodipine for his high blood pressure.

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