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Swooshing in ears

This topic has 6 replies, 6 voices, and was last updated 4 years, 12 months ago by Janice Pritchard.

Viewing 7 posts - 1 through 7 (of 7 total)

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April 17, 2019 at 11:20 am #46531

Aureta
Participant

I have low MDS. I experience swooshing in ears with heartbeat. Has anyone had this n if so, any suggestions how to avoid it.

April 17, 2019 at 4:10 pm #46532

Brenda Peacock
Participant

Hi, I had that when I was first diagnosed. I believe it was due to being anemic, once I brought my iron up it stopped. Haven’t had it since.

April 18, 2019 at 6:38 am #46539

Kathy Stermer
Participant

I have had this frequently most often related to my hgb being low especially when I lay down at the end of the day if fatigued. This is most definitely a sign that hgb is low. For me it’s distressing as it’s a constant reminder to me that something is wrong. Learning to listen to my body

April 18, 2019 at 10:51 am #46541

Aureta
Participant

Thanks for input. Thought that was what it meant. Am taking Vidaza n started having swooshing again in ears n was hoping that wasn’t what it probably meant. Sounds like it’s stopped working but will see at next labs.

April 25, 2019 at 3:49 pm #46582

Ken Yamashita
Participant

Hi Aureta, I’ve been undergoing Vidaza treatment since 2014. Each time my hemoglobin count drops below 7.0 I begin to experience the swooshing in ears with heartbeat. As soon as I receive my monthly blood transfusion (3 units of blood once per month) the swooshing in ears with heartbeat is gone.

May 1, 2019 at 3:06 pm #46606

Don Child
Participant

My wife has had ear problems in addition to low-risk MDS. She went to the audiologist and had a fluid build-up in the middle ear. The doctor put in a tympanic drain that stopped the whooshing and heartbeat in the ear. The other ear is now building up, and the doctor said it may be alergies, and commented that she has a very narrow ear canal. I never considered that it could be related to her MDS.

May 1, 2019 at 4:36 pm #46607

Janice Pritchard
Participant

I have had MDS since 2008 (11 years). I have been on Procrit, Revlimid, and now Vidaza. My hemoglobin has been as low as 6.0. Once I go below 8.0 I start noticing the swishing. The only remedy for me is a transfusion. When I hear the swishing, I know it is time for another transfusion. Based on what I’m hearing, this seems to be prevalent in others’ journey.
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