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Talked with Audrey at MDS Foundation

Home forums Patient Message Board Talked with Audrey at MDS Foundation

Viewing 6 posts - 1 through 6 (of 6 total)
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  • #2851
    Dawn
    Member

    Hi there… I made a call to Audrey and got some information, fortunately they are having a conference in AZ and I think my dad will go…. she also asked me questions on my dads treatment and told me she can hook him up with a center of excellence MD…. I am very happy and excited about this, now hopefully dad will cooperate…. I have mom prodding too and she was excited about the info I had for them and promised me that if dad didnt call Audrey that she would. My dad is in a depressed and feeling hopeless….I wish I could take his place….

    #2852
    Donna
    Member

    That’s good news Dawn! — Hopefully after he connects with a MD from a center he won’t feel so hopeless.

    I connected with Audrey as well when Mom was diagnosed, she was very helpful. Because I’m from Canada it was very difficult to get to a center (also, Mom didn’t want too) I did connect with a woman here through our local Red Cross, she was very supportive.

    Good Luck,
    Donna

    #2853
    czaring
    Member

    Good work Dawn. It sound like you feel a bit more empowered. That’s what this place is all about.

    #2854
    Dawn
    Member

    Thanks guys… let’s just pray my stubborn daddy won’t be a pain and say “I’m not traveling that far”..(3.5hrs)…. he can be such a turd!!! But boy do I love that man!!!

    #2855
    shirlsgirl
    Member

    hahaha! thanks for making me laugh! Tell him it’s for his own good!
    smile Good Luck! Jody

    #2856
    Suzanne
    Member

    Dawn, Tell that Dad of yours not to give up. There are lots of us out here who got past that scary “6 months to a year to live” and “no cure except a bone marrow transplant”! Some of us had the transplant but a lot of us have not for one reason or another and we are months and years beyond that prognosis. Our time has also been quality timefor the most part. Most of us are dealing with experimental drugs going for improvement of our condition or slowing down the progression of the disease.There have been so many new development just in the two years I have been dealing with this disease-a lot of them very recent. I can’t help but feel there is hope for many of us!

Viewing 6 posts - 1 through 6 (of 6 total)

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