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Thank you to the MDS Foundation

This topic has 4 replies, 5 voices, and was last updated 3 years, 6 months ago by Robert Bartoletti.

Viewing 5 posts - 1 through 5 (of 5 total)

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September 22, 2020 at 5:00 pm #52886

Rita Knopick
Participant

I want to say “Thank you” to the MDS Foundation for all of the information and help they have provided me as a care giver for the past 3 years. My husband was diagnosed 3 years ago with MDS very high risk and only given 12-18 months to live. He was on dacogen every month until June of this year when he transitioned to AML. We tried Venclexta and injections starting in June, but he passed away July 23. The Foundation was so very helpful with helping us with a second opinion at a Center of Excellence. This Patient message board has been a great help to me as a care giver as well. Patients and Care Givers never loose HOPE. Someday a cure for this disease will be found.

September 23, 2020 at 12:22 am #52888

Marie Miguel
Participant

Aww a big hug and condolence, Rita.

September 23, 2020 at 12:48 am #52889

Kathie Wolf
Participant

So sorry to hear of your husbands passing. Hugs and prayers for you and your family. Take care of yourself.

September 23, 2020 at 7:01 am #52890

Anonymous
Inactive

Dear Rita, We were saddened to hear the news of Stephen’s passing and know how much you miss him. Our prayers are with you and your family and remember all the good times and memories you have to cherish. Hopefully, another treatment, and eventually a cure, will result from our efforts. Most sincerely, The MDS Foundation

September 30, 2020 at 7:27 pm #53017

Robert Bartoletti
Participant

I have been recently diagnosed with MDS. Just Googling steered me to the MDS Foundation website. It is a bright light among all the dark clouds surrounding my family and I right now.
Thank you.
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