Hi Sarah, Has the Dr. suggested Procrit or Aranesp ? Both have helped Glen, he started with procrit, that brought his counts up for a long time. When his hbg dropped to 8.0 dr. started him on Aranesp. His counts now are the best they’ve been since he was dx., even the platlets are way up, 187000 this week ! He did take ferritin inj. a couple of months ago for 4 weeks.What ever caused his counts to rise we are grateful for.
Now we are confronted with blood clots again, it seems we can’t win with this disease. We left the east coast on tue. got as far as minneapolis, and went to the ER at Fairview Hosp. He was given an ultasound and dx with many clots, the Dr. wanted to admit him there, but stubborn man said no, he wanted to go home. He was given a direct admit to the Hosp. in Duluth. He was treated, keep over night and sent home to give lovelox and coumadin. this is a first for us, we’ve never had to give inj. at home before.This doesn’t disolve his present clots it just prevents more from forming.He’s on complete bed rest with leg elevated and little activity in hopes the clots will disolve on their own. We need to be aware of many things that can go wrong with this illness, including side affects from the various meds prescribed.I guess we have to take the bad with the good, one day at a time.
I hope that things will work out for the good for Charlie.
Praying for all those who are suffering with this unspeakable disease.
Ellie