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Transplant Diary

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This topic contains 27 replies, has 10 voices, and was last updated by  Lori Kissinger 1 week, 3 days ago.

Viewing 13 posts - 16 through 28 (of 28 total)
  • Author
    Posts
  • #46517

    Rose eden Guanzon
    Participant

    Day + 13
    We are going home tomorrow. The central line on his neck has been replaced by a PICC. Alleluia! We hope that the worst is over and pray that the stemcells of his sister find a good home in him. Pray, hope and do not worry! is my mantra.

    #46525

    Sue
    Participant

    So happy for you both Rose! Was very surprised and pleased that he is leaving at Day +14; is that because he had a low intensity chemo – or just because he is a star patient? ๐Ÿ™‚ We met with our transplant team this week and my husband is ‘on the launch pad’ (as his doc put it) for a transplant very soon, with an anticipated hospital stay of 4-6 weeks. Because we are 2 hours away from the center we will need to stay in Buffalo (Roswell Cancer Center) for another 1-2 months after discharge. Initially the transplant doc didn’t seem to be in much of a hurry to move until he reviewed his most recent biopsy which indicates he has acquired an abnormal monosomy 7, and has 3% circulating blasts. And so the journey begins. My best to you and your husband – sending prayers and good thoughts your way.

    #46545

    Paul Dyer
    Participant

    Rose,
    So good go hear things are progressing for you. From here on out, itโ€™s a slow and steady battle. Remember, every little victory is one step closer to overall success!

    #46549

    Rose eden Guanzon
    Participant

    Day + 15
    Hi guys and gals. The docs say he was allowed to go home because his wbc is back to normal and he had showed no symptoms of adverse reactions to the transplant or to the any of the antirejection drugs. But it is too early to tell if the transplant was successful. Well, we count our triumphs by miniscule steps and we are just happy. We are staying near the hospital too. We are actually scared of being too far from the hospital. I suppose with each new day, we will eventually wean ourselves away from it.

    #46732

    Rose eden Guanzon
    Participant

    Day + 40
    We just got the chimerism result for day 28. It is 100%! Thank you for all yours prayers. My husband is doing well and we are content to measure success on a daily basis. The awful side effects we expected, in retrospect were not truly that awful. Thank you God.

    #46735

    Mirna Mih
    Participant

    Great news. Best of luck!

    #46745

    Pat Lawson
    Participant

    So glad to hear that he is doing so good!!!

    #46898

    Rose eden Guanzon
    Participant

    Day + 30
    The first chimerism test came back and it is 100%. His counts are great. For the first time since his diagnosis of mds, we are seeing double digits rbc and his platelets are normal. His wbc has gone up from 0.3 to 3.7. Lord pls. Let this trend continue.

    #46901

    Bob Cook
    Participant

    Excellent ! I share in your joy today !

    #47003

    Rose eden Guanzon
    Participant

    Day 95
    I am so sorry i was not able to update this post for a long time. My husband’s 30 day post transplant chimerism test came back 100%. Then he started to have lbm and some rashes. His 60 day chimerism test results was only at 45%. They have put him on 40mg of prednesone. We are on our 3rd prednisone week now. His lbm is almost gone, so are the rashes. The prednisone has been reduced to 30mg. They did a bone marrow biopsy on the 90th day and we are awaiting results. So far the only sign that there may be gvhd is the lbm. Oh God! Please make this work! God bless to everyone.

    #47008

    Amy Clark
    Participant

    Rose, I just prayed for you and your husband. I am sorry this is such a roller coaster of emotions. I know from your earlier posts that your faith is helping you through this time. I will ask for peace and strength and wisdom to be given to both of you. Thank you for sharing and keeping us updated when you can. I look for your posts and feel grateful to hear how you all are doing. Don’t ever think that no one reads or cares on this forum; many of us are just silent cheerleaders and prayer warriors. Hang in there. Very glad to hear that the prednisone is working for his rash and lbm. We are hoping for the best results possible of the biopsy. Amy

    #47012

    Dale Frank
    Participant

    Rose, sending my very best hopes for you and hubby. Thanks for all the info in your diary. It is so helpful to those of us dealing with MDS and considering SCT. I just got on the forum and so read your posts “retroactively”. I have a good feeling for your outcome.

    #47026

    Lori Kissinger
    Participant

    Hoping for the best for you and your husband, Rose. I too appreciate all the info in your diary as I will be undergoing SCT in a few months. May your faith get you through all the ups and downs.

Viewing 13 posts - 16 through 28 (of 28 total)

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