Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Trouble getting blood transfusions

Tagged: transfusions

This topic has 1 reply, 2 voices, and was last updated 2 years, 8 months ago by Nancy Gumm.

Viewing 2 posts - 1 through 2 (of 2 total)

Author

Posts
July 12, 2021 at 8:24 am #54740

Peggy Grubbs
Participant

The nation wide blood shortage is causing a restriction on blood transfusions in our area. The local protocols say hemoglobin levels have to be at 7 before Cancer patients can be transfused if they are stable. What is considered stable seems to be subjective.
I function much better when my hemoglobin is above 8.5. I also have pulmonary hypertension and high output heart failure when the hemoglobin gets low. Is anyone else seeing this restriction on blood?

I have MDS-RS and am scheduled to begin Lusteracept next week and am currently transfusion dependent.

July 31, 2021 at 10:09 pm #54789

Nancy Gumm
Participant

No trouble in Florida so far getting blood. My husband did
Luspatercept And it worked well for about 6 months and then stopped working. Transfusions now weekly platelets and red blood cells. He is going to get a stem cell transplant if he stays healthy in a couple of weeks…by healthy I mean no infections. Good luck!
Author

Posts

Viewing 2 posts - 1 through 2 (of 2 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.

Welcome to the MDS Patient Message Board Post New Thread

Trouble getting blood transfusions

Register for an account, or login to post to our message boards. Click here.

Login

Login

Login

Search Forums

Recent Topics

CONTACT US

MEMBER OF