Hello everyone — My husband began his journey last April 2018 when what seemed like out of the blue he was so fatigued he could barely walk up a set of stairs, he looked ungodly white and through his GP was recommended he go see a hematologist. He had anemia of chronic disease. At that appointment he had 6.3 Hemaglobin and had to get three unit of blood immediately. We had no idea why this had occurred and what was to lie ahead. Since that time he has had 10 blood transfusions, countless shots of Aranesp, IVIG, Prednizone (steroids) some back to back some given one off. Right now we are in a bit of a testing situation to see if Aranesp is helping or not. Because we aren’t sure if in addition to not having a blood production problem we might also have a destruction problem. Next weeks CBC should tell us if Aranesp is or isn’t working. He has been diagnosed with low dose MDS a couple of months ago. In looking at all the classifications he most closely aligns with single lineage dysplasia (we guess). He is 71 years old and other than this condition is in really good health. We are wondering if others with maybe the same condition are seeing two/three months of high (12ish) HGB followed by low HGB for a couple of months. Right now he’s at 9.3 HGB which we haven’t seen since Jan. 24. Thank you for listening and would love to hear opinions. Best Janice and Russ Janice Wilson
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