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very hard decison to make cord blood transplant

This topic has 17 replies, 1 voice, and was last updated 15 years, 7 months ago by Harold P.

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October 3, 2008 at 5:55 pm #21090

3kids1dog
Member

Bev-

Good luck to you and your husband. I agree the 33% chance far outways the few weeks/months.

God bless you.

October 15, 2008 at 1:26 am #21091

jaxem
Member

Hi, Simon
My wife was given adriamycin after her breast surgery since she was estrogen negative & drugs like tomoxifin wouldn’t have worked. We were told that less than 1% of patients get blood diseases such as leukemia and usually it occurs about 5 years after starting the adriamycin. Since we were never able to get her into remission which is recommended for cords, we found the Univ. Minn. had a trial where natural killer cells were obtained from a haplo or half donor (my son) and transfused following a pre-transplant process. The NK cells would hopefully kill the leukemia cells and after about 10 days, stem cells would be transplanted from my son. Since you’re dealing with mature cells, the waiting time for grafting would be less and the entire process would be less critical than for cords. My wife became much too fragile for them to go through with the procedure. Following about a month after returning home and about 3 years after 1st being diagnosed with MDS, my wife passed.

October 17, 2008 at 3:17 pm #21092

Harold P
Member

Hi Bev, Jack & Ms Simon,
I haven’t been on the forums for awhile due to helping my mom & dad with health issues.

Ms Simon,
Thanks for the feedback on my questions. I do understand why you are glad you went with the SCT. I am hoping & praying that the Vidaza is working for you. I am going to read your blog. Please keep us updated.

Jack,
Since I haven’t been on the forums for ahwile I would like to know how your wife is doing? Was she able to qualify for the Haplo? I continue to pray for all of you. Please keep me posted.

Bev,
I do understand why Barry has chosen the umbilicord transplant. I read your Caringbridge journal everytime I get an email saying it has been updated. You & Barry have been dealing with a great deal of stress. I keep you all in my prayers. I hope you have a speedy recovery from your recent surgery. Tell Barry to stay strong & to try to keep his spirits up. Don’t give into to this horrific disease. Take care.

My husband is continuing to do remarkably well. Thank God. He is still able to do the wait & watch.

God Bless you all.

Sandy & Pete Peterson
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