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Vidaza

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Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • #52723
    Kathie Wolf
    Participant

    Has anyone reached remission with Vidaza or Decatabine and stopped it? Did it work when your labs started dropping?

    #52760
    Rita Altman
    Participant

    After 8 cycles we stopped Videza last month. Numbers stayed steady for the eight months but no improvement. Not sure what is going to happen now. Was hoping the mouth sores and skin infections were caused by the drop in platelets during Videza
    (low was 14). Mouth sores have continued. Really bad today. Platelets were are 24 when we stopped. Will keep you posted as time goes on if you would like me too.

    #52761
    Kathie Wolf
    Participant

    Thanks Rita for your response. My husband had a great response to Vidaza, completely in remission currently after 1 year of monthly treatments. His labs have been stable for about the last 5 months. (Hemoglobin, platelets and white cells) White blood cells were the last to stabilize. Good luck, let me know how things go..,

    #52819
    Belinda Chadwell
    Participant

    Thank you for your reply, it has given me hope! I’m currently on my eight round of Vidaza (azacitidine) every month for 7 days, and Aranesp injection every three weeks. I was told last that I could continue the rounds but as of right now the treatment was not helping. I continue to have blood transfusions as well about every 4-6 weeks. It really takes up you time during the day. I just don’t know how long this can go on, before nothing is working?

    #52823
    Rita Altman
    Participant

    Brenda,
    My husband last treatment was July 17. He has only had one precept shot and I have not noticed any changes In his health since stopping. We will be going back in two weeks and will check his levels and get another shot. I will keep you posted. Please feel free to message me. Good luck. Rita Altman.

    #52824
    Kathie Wolf
    Participant

    After consulting with Stanford oncologist from their BMT unit, my husband has decided to stop Vidaza for awhile. His oncologist will monitor labs and use his bone marrow biopsies to guide further care. He is currently doing well. Will see how this all goes, uncharted territory per his oncologist.

Viewing 6 posts - 1 through 6 (of 6 total)

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