Vidaza infusion?

[Judith Barnes]

Has anyone switched from subq to Infusion for Vidaza? I really don’t like the injection site discomfort from the subcutaneous injections. I have had a port for breast cancer treatment twice. I don’t love them, but they are the lesser of many evils. I have made an appointment for getting a port but I would like to first speak to someone who has made the switch.

[Judith Barnes]

Clarification: this is my sixth cycle, and I am having a good response to Vidaza.

[Amy S.]

My Vidaza treatment is via infusion,no injection. Basically I get the medication via IV. I do not have a port. There is no discomfort.

[Jerry Allen]

Do they have to start an IV each time or is it a heparin lock for the week of treatment? I’m getting injections, two per day for 7days. So far so good. Except the last two shots of the cycle burned like fire 🔥. Otherwise they’re tolerable. Round 4 coming up Monday.

[Amy S.]

Yes, for me, they start the IV each time, no heparin lock.

[Jerry Allen]

Did you ever have the injections burn like fire? If so,what was the cause? Mine have been pretty good except for the last two.

[Judith Barnes]

Jerry, the shots cause me itching, burning, bee-sting-like sensations, and loss of sleep. I can’t take it anymore! I’m getting a port.

[Glen Sakamura]

When first diagnosed I was administered subQ injections with Vidaza. Two shots for a week. First it hurt a bit but with the nurses and I experimenting the best application, they would spin it in their hands first before injection. This helped and giving it a little faster helped too. As for a port, I got one put in and couldn’t be happier. Unfortunately for me, Vidaza sustains me as I have MDS/MPN overlap Uncl, Sweets. Good luck

[Judith Barnes]

Glen, thanks so much for that. My nurses all know to spin the syringes in their hands first. But I had such a bad week of belly shots and just can’t take it anymore. I’m really looking forward to getting my port. 🥰

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