Good morning,
Would like to say that this site has been so informative and I also told Dr. Letendre that he was on the MDS site as “Centers of Excellence”. He smiled and said “He didn’t know that”. Anyway, they are now questioning whether husband has MDS or not. The blood counts and Chromosome testing is just not the way they should be for MDS. They just aren’t sure what’s wrong. Before this last appt. his hemoglobin was dropping and that was the only thing I noticed that was off. But now I guess there are other counts that are off including his platelets that are dropping. They are wondering if all this has to do with his bone marrow and non-hodgkins lymphoma. He received a blood transfusion, he feels a little better, but he said he thought he would feel better then he is. I’m not sure how long a transfusion takes to make you feel better. His white count is 120, but they say that’s because he had his spleen removed. This Tues he will go back to mayo and have a chest x-ray and CT. I guess we wait and see. The up’s and down’s of this disease is mind boggling.
Barb