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We need your help! HMA Treatment Survey

Home forums Patient Message Board We need your help! HMA Treatment Survey

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    Site Admin

    Have you been diagnosed with Myelodysplastic Syndromes (MDS)?

    Are you a caregiver to someone diagnosed with Myelodysplastic Syndromes (MDS)?

    We would like to hear from you!

    An MDS diagnosis is a life changing event and its treatment can impose challenges on patients and their families. The MDS Foundation is collaborating with researchers at Pharmerit International to recruit participants in the United States for a survey study to assess the treatment experience and challenges associated with currently available treatments (azacitidine [Vidaza®])/decitabine [Dacogen®]) for MDS among patients, and how it impacts their caregivers.

    Please consider taking a one-time 30-minute, anonymous online survey by clicking on the link provided below. Your responses will help us better understand the treatment experiences of individuals with MDS. At the end of the study, we will share some of the findings with you.

    You will be compensated with a $50 Visa digital gift card for your participation in this survey. You will be asked to provide us with your name and email address at the end of the survey so we can send you the incentive. If you do not wish to receive the incentive or would prefer that we send your incentive to the MDS Foundation, you may still participate in the survey. This survey is best viewed on a desktop or tablet. This survey is intended for a maximum of 500 participants and we will close the survey at that time.

    If you (the patient with MDS) are unable to respond to this survey yourself, we would like to hear from your caregiver. Please feel free to share this email with the link to the survey with your caregiver. Please do not share this link with others and note that we will only accept one participant per household, either a patient or a caregiver. Please don’t forward the invite to your family and friends as this is intended only for contacts of the MDS Foundation.

    The study has been reviewed and approved by the Advarra Institutional Review Board (IRB). Funding for the study is provided by Taiho Oncology Inc. For additional information and questions, you may contact:

    Jordana Schmier at or Namita Joshi at

    We thank you in advance for your time in providing this valuable information.

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