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Wheatgrass to lower Ferritin

Home forums Patient Message Board Wheatgrass to lower Ferritin

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Viewing 9 posts - 1 through 9 (of 9 total)
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  • #52552
    Len Tillem
    Participant

    I receive approx. 3 transfusions a month.
    My ferritin # is close to 4000.
    I decided with, my oncologists approval, to get a transfusion whenever my HGB gets into the low 9s.
    A quality of life decision.
    Below HGB of 9 I’m bedridden.
    I saw a video by an oncologist put on by Leukemia Society about wheatgrass lowering ferritin.

    Myelodysplastic syndrome. Wheatgrass acts as iron chelator


    Google this topic.
    I’m drinking 3 oz. of wheatgrass each day.
    It’s pressed fresh and sold at a local market.
    Has anyone else tried wheatgrass?

    #52587
    Kathy Stermer
    Participant

    Thanks for this info. I’ve had to stop chelation drug due to low platelets and get 2 units every 2 weeks so will give this a try. What’s the worst that can happen? Prefer a more natural approach than that nasty, expensive drug anyway

    #52588
    Len Tillem
    Participant

    I just had a video conference with my oncologist at UCSF, an MDS transplant specialist. She said taking wheatgrass would be OK and she could see no reason not to use it. She had not however heard of its benefits in lowering ferritin. Fortunately for me there is a juice bar in Sonoma the sells it fresh.
    I’m drinking 3 ounces a day. I’ll test my ferritin levels in a month.You can Google wheatgrass and ferritin reduction.

    #52978
    dramaticcillow
    Participant

    Yes, I read somewhere that Wheatgrass juice is an effective iron chelator and its use in reducing serum ferritin should be encouraged in myelodysplastic syndrome and other diseases where repeated blood transfusion is required.

    #53105
    Belinda Chadwell
    Participant

    Len, would taking the capsules be just as good?

    #53108
    Len Tillem
    Participant

    I don’t know the answer to this.
    I do feel that freshly pressed wheat grass juice would be better than dried product.
    I got my 6th luspatercept last week.
    I don’t think I’ve received any benefit.
    My transfusion needs are still as high as ever.
    Does the insurance (Medi-Care) now stop paying?
    If insurance will pay for more luspatercept should I continue getting this drug?
    Anyone have any experience with this?

    #53255
    Belinda Chadwell
    Participant

    Hey Len…..did you have any luck with the wheatgrass lowering you ferritin levels? I started, with approval, taking three capsules of wheatgrass each morning. The first month it appeared that it brought it down by 230 points. Just wondered if you have any betterluck with drinking the wheatgrass?

    #53256
    Len Tillem
    Participant

    I have been drinking 3oz fresh wheat grass practically daily since June.
    My ferritin was 3900 then.
    I have had over 90 units of blood.
    I get 3 to 4 units month.
    Last week my ferritin was 3600, a 10% drop.
    I didn’t know about the capsules.
    I’m going to keep using wheat grass.
    Both my oncologists, one in Napa, and an MDS specialist at UCSF are not yet convinced.
    Both do agree it can’t hurt.
    Those of you with high ferritin levels start taking wheat grass daily and report the results here.
    Please.

    #53260
    Kathy Stermer
    Participant

    I have been using powdered wheatgrass since early August after seeing this post and since I had to quit Rx chelation due to low platelets in May. My ferritin was in the 1600 range in May and had it rechecked after taking wheatgrass for a month (had also had 3 months of transfusions every 2-3 weeks). My level was still around 1600 so I was pleased. Will get rechecked beginning of December (am still getting regular transfusions) and report back. If levels holding or less would say it definitely has benefits.

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