Jack:
This is absolutely wonderful news! You are pioneering a therapy that sounds extremely promising. I think since you are the only CMML patient and doing well, gives others a lot of hope.
I couldn’t agree more with your advice on taking natural supplements. Dr. first, reseach, and then action if you feel stongly that they will help you.
There are a lot of claims out there on herbs and supplements and with no regulatory body overseeing much of it, well, what can you believe. I think that if one person takes something that helps them, there is another taking it that does harm. Who knows when you stimulate the good cells you are not doing the same for the bad?
Then of course there are those, especially taking liberties with claims, that are only in it for the profits. Building false hopes for those when they are the most vulnerable.
I think anyone has the right to do with their bodies what they choose. However, for anyone who is new to MDS, going with the more educated and experienced Dr. is your absolute best bet.
Juicing the all natural and well known vegetables and fruits is probably very beneficial, as long as they have a good solid WBC. But going to the health food store and cleaning off the shelves of newly discovered herbs and additives is a bit risky in my opinion.
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