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MDS is a blood cancer
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Viewing 15 posts - 16 through 30 (of 109 total)
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  • in reply to: hiperfibrotic mds #8627
    Donna
    Member

    Hi Sarah, I don’t know much about fibrous tissue, I do know though that mom had the same problem with her one and only bmb. She was in excruiating pain during because they had to go much deeper than anticipated to get a sample. As it was, they couldn’t get much because her marrow as well was so fibrous.
    I spoke to someone at the red cross about that and they told me sounded like mom at a different type of mds one that is strongly associated with fibrous marrow. I never did find out.

    Take care,
    Donna

    in reply to: transfusions #8551
    Donna
    Member

    Same for Mom, someone would drive her and then pick her up when she was done. Although, once she did say it was ok she’d stay on her own, after she was dropped off I had a funny feeling and went back to stay with her, she was quite happy I did.

    in reply to: transfusions #8543
    Donna
    Member

    Hi Sarah – my mom as well had a reaction during a transfusion, they quickly treated her with benedryl, future transfusions she was watched very closely. They didn’t pre medicate her though.

    Donna

    in reply to: Daddy's celebrating his birthday in heaven #8451
    Donna
    Member

    Sounds like your dad was waiting to hear you all sing to him.

    Sad, beautiful and very touching.

    My condolences to you and your family Carrie.

    Donna

    in reply to: The good news is over… #8346
    Donna
    Member

    I’m so sorry Carrie. My prayers are with you and your family.

    Donna

    in reply to: Need insight! #8103
    Donna
    Member

    Hi Jim,

    I too am very sorry. Your experience sounds quite similar to my mom’s passing. It’s soo sad. May you find comfort in knowing she is now free from her pain and is no longer suffering.
    It’s a very tough road, losing a parent, I wish you strength.

    Take Care,
    Donna

    in reply to: Finally, a little good news #8294
    Donna
    Member

    Hi Patti – That is good news!. I bet it did help your mom to hear that. So true – “A little good news is always good for everyone

    Take Care,
    Donna

    in reply to: Two Years Today #8260
    Donna
    Member

    Hi Terri, You know what? – you have every reason to celebrate, and every reason to be scared. Illness is always scary, the not knowing for sure what’s going to happen is unbearable. Bob sounds like he is doing well, enjoy each day, none of us know what tomorrow will bring. Sounds like those vitamins and supplements are doing their job – that’s fabulous.
    Keep thinking good thoughts Terri!

    Cheers,
    Donna

    in reply to: Alternative medicine for AML-M4 #8248
    Donna
    Member

    Hello Sigit,
    I’m so sorry your little one has to endure this disease. Children are amazing when it comes to the strength within them. I would tend to agree with Linda jo – because aml-m4 advances so quickly perhaps it may be best to try to combine the 2. They have come so far with treatment, perhaps you could have a consultation with someone. I do realize you are in Indonesia, don’t know if travelling to the states is an option for you. I don’t know how cost and medical insurance would come into play.
    Could you perhaps email Audrey Hesson from the mds foundation? – Little Rayi is so young hopefully someone can help.

    All the best,
    Donna

    in reply to: Day -6 #8193
    Donna
    Member

    Hi Doreen, I’ve just spent some time reading over some of your journal entries. I just want you to know that I too am thinking about you. Stay positive, keep thinking those good thoughts. The minute those negative thoughts come into your head tell them to get the @#!! out of there. A friend of mine told me to do that when I was going through a rough time, it really worked at snapping out of the negative moment. Soon, you will be home smelling the fresh air again. You hang in there!

    Take Care,
    Donna

    in reply to: 34th Anniversary :) #8145
    Donna
    Member

    That’s great Carrie! – good news!.

    Have a great time at the birthday party!

    Donna

    in reply to: Bill Wolter #8204
    Donna
    Member

    I’m so sorry to hear that. My thoughts and prayers go out to Bill’s family as well.

    Donna

    in reply to: Bill Wolter #8202
    Donna
    Member

    Hi Pam,

    Is this the Bill who signed in as Bill and Mary?.

    Donna

    in reply to: Karen #8071
    Donna
    Member

    I’m so sorry for your loss Don. Karen is at peace now and is no longer suffering.

    Donna

    in reply to: to all my forum friends #7924
    Donna
    Member

    Hi Sandy, I too have been thinking about you and the kids.
    I tried sending you a personal email but it kept coming back.
    Wonderful that you’re able to log on again!!.
    I can’t believe it’s 9 months since Joe passed, It’s coming up on a year since Mom passed away (Aug 1st). The time goes so fast (sigh).

    Strange having to start a new life isn’t it?
    It’s pretty amazing the strength we have within ourselves to go on, but you know, that’s what our loved ones would want.
    I just keep reminding myself, the pain is gone now for mom.
    Anyway, don’t want to start getting all melancholy now, you take good care Sandy of yourself and the kids.

    Donna

Viewing 15 posts - 16 through 30 (of 109 total)

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