MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 15 posts - 1 through 15 (of 246 total)
  • Author
    Posts
  • in reply to: My Brave Man is now at Peace #19229
    Kathryn
    Member

    Terri, I was just checking in & saw your post. I am so sorry about Bob’s passing. You guys were always such a source of strength for me when my father was going through his journey.
    I am wishing you peace that passes understanding. May you find strength through your memories & love.
    Take good care,
    Kathryn

    in reply to: some good news. #18784
    Kathryn
    Member

    Hey Frank!

    I was looking to see how you were doing & am so glad to read your good news!

    Wishing you the best!

    Kathryn

    in reply to: my dad #16958
    Kathryn
    Member

    Eve, I am so sorry for your loss. You & your family are in my thoughts & prayers.

    I second your advice about paying attention to symptoms of infection. It can obviously make a huge difference.

    With best wishes,

    Kathryn

    in reply to: The will to live.. when you have MDS #16902
    Kathryn
    Member

    Wendy, I just sent you a note….

    Big hugs to you,

    Kathryn

    in reply to: It's happening again… #16669
    Kathryn
    Member

    Butch, you & your girls are in my prayers. I am so sorry that you all are going through this again…. May your love & your faith give you strength.

    Kathryn

    in reply to: Arsenic drug #13149
    Kathryn
    Member

    My father was on Trisenox. It was apparently working for him; his counts had begun to come improve. He wasn’t on anything in addition to it beside frequent transfusions.

    Best wishes,

    Kathryn

    in reply to: The END is near… #13287
    Kathryn
    Member

    Please know that you, your father & your family are in my thoughts & prayers.

    Best wishes,

    Kathryn

    in reply to: Hans is gone #12068
    Kathryn
    Member

    Esme, oh, I am so sorry. I know how hard you and Hans fought. I hope that your love will continue to bring you strength. Know that you and Martha are in my prayers. I’m sending you my love, hugs & healing thoughts for peace in your hearts.

    Take care,

    Kathryn

    in reply to: Hans and Esme #11587
    Kathryn
    Member

    Jody, thank you so much for informing us and for posting a link to their page.

    Hugs to you,

    Kathryn

    in reply to: new results #11494
    Kathryn
    Member

    Hey Jody,

    I’m so glad that your mom is feeling well. Such a breath of fresh air! I wish her many MANY days of feeling well & good news at her doc. visit in 6 weeks.

    Take care,

    Kathryn

    in reply to: low numbers #11483
    Kathryn
    Member

    Hi, it seems like my dad’s white’s were really high at one point and then came way down while he was on Vidaza. Never as far as your dad’s, but significantly lower. His problem was always his platelet count. He had a very hard time keeping it up.

    What kind of tx. is your dad getting? I know that with some tx. Lasix needs to be given to keep fluid from building up. I beleive that is with red or whole blood.

    Well, my best wishes to you & your father. Keep the faith.

    Kathryn

    in reply to: THALIDOMIDE NEXT STEP #11460
    Kathryn
    Member

    Dee, my father was on a low dose & from what I can recall, didn’t experience any significant side effects.

    I’m sorry things are challenging for you…. Keep the faith though & it will work out alright.

    I’ll be praying for you.

    Hugs,

    Kathryn

    in reply to: New Trial , wish Hans luck! #11455
    Kathryn
    Member

    Hey Esme,

    Best of luck to Hans.! Know that you guys are in my prayers & that healing thoughts, love & hugs are being sent your way!!!

    Kathryn

    in reply to: Update on Hans #11299
    Kathryn
    Member

    Hi Esme, keep your positive thoughts in the forefront! Yours & Hans’ attitudes have always been so inspiring…. It sounds like you all are making the most of each day, as we all should. Carpe diem!

    You, Hans & your family are in my prayers and healing thoughts & love are being sent your way.

    Kathryn

    in reply to: Update #11187
    Kathryn
    Member

    Hey Terri,

    I can certainly understand how tired and scared you must be. I am so sorry. You guys have been so strong for so long.

    Keep the faith and know that you & Bob are in our prayers.

    Take good care.

    Love,

    Kathryn

Viewing 15 posts - 1 through 15 (of 246 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert