[Lasko745]

Ahhhh finally back. Mom went to the dr today. She had another BMB last week and all the tests to see if her body is otherwise healthy. Things are looking good as they can in this situation. I completely forgot to ask about subclass though. I will find out. Dr says her does have chromosome damage. She does not have any blasts. Can someone explain what exactly these mean?

The plan is for her to go into the hospital next week to get the show on the road…

[Lasko745]

Bergit,

My mom is pretty much the same way Ken feels after TX…it changes every time. After the first one she went home and put up Christmas lights! The last time she was ready to go take a nap. Maybe it depends on the bag you get? Maybe your mental state play a part?

I wish you well. 🙂

[Lasko745]

I hope this reply finds your mom in favorable results…just curious to see how the transplant is coming along.

[Lasko745]

MNladyslipper…her latest transfusion was this past Monday and beforehand her hemoglobin was 7.5, I am not sure about the other numbers. I asked to see her paperwork last night actually and they have not given her any with counts. Just told her the hemoglobin count each time. That is what red flagged her doctor, so to speak, because before they knew what was wrong, it kept dropping. The lowest it has been is around 5. And beyond that, the only thing I know is her white has always been where it is supposed to be. They have not said anything about chromosome damage but I will be sure that she brings that up. I would hope that is something the dr would of told her though. She has to keep in touch with the dr at least once a week right now.

After reading on this forum, I told her that she needs to request a copy of all the counts. I appreciate the knowledge here.

On a positive note, we did find out that insurance will pay 100% and there is no cap. She will get long term disability from work as well. Now we just wait for my aunt to make plans to fly out here…she is in Denver and we are in Detroit.

[Lasko745]

Thank you! About a year ago, my mom was told she was anemic. She was taking pills for that. But she was still very tired all the time so she went back to the dr. It was appointment after appointment not knowing what was the exact problem for quite some time. They were testing her for just about everything it seemed. She had too much iron so they took her off the pills along the way. She had her BMB and the dr sent her to Karmanos in Detroit. That is where is was diagnosed. The transplant will take place at Harper Hospital next door to Karmanos. I have not had any experience with that hospital and since is in a bad part of town I am somewhat weary, but because of the area not the drs!

I know that the BMT is what we have to do to fight this, but it is hard because besides being tired she seems fine. I have an idea what to expect with the BMT and the coming months, but nothing can truly prepare you. I just hope by this time next year, I might be able to exhale.

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