MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 15 posts - 1 through 15 (of 40 total)
1 2 3
  • Author
    Posts
  • May 7, 2005 at 2:03 pm in reply to: We lost the fight #5796
    LisainOk
    Member

    {{{{{Kate}}}}}
    I’ve been gone and just read this frown I am so sorry for your loss. I’ll be praying for you.
    Many blessings~Lisa

    April 13, 2005 at 2:26 pm in reply to: Was away for a while #5359
    LisainOk
    Member

    Welcome back Neil!!! I’m really thinking next time you should leave us a note or something so all of us worriers know what’s up!!!!! Glad you had a good time Neil!

    ~Lisa

    April 2, 2005 at 4:02 am in reply to: Update #5215
    LisainOk
    Member

    Esme,
    I pray all goes well and he kicks the aml in the you know what! I’ll be thinking and praying for both of you.

    Blessings~Lisa

    April 1, 2005 at 5:02 am in reply to: Another bump in the road #5184
    LisainOk
    Member

    Greg,
    I can only imagine how frustrating this must be:( I’m so sorry for your mom. I know it’s difficult, but try to have faith that it will all work out for the best. I’ll definitely be praying for her.
    Blessings~Lisa

    March 31, 2005 at 2:38 pm in reply to: Difficult times #5154
    LisainOk
    Member

    Karen,
    I was thinking the same thing. In some ways, I feel like I’m losing my dad all over again. I am just heartbroken for the families experiencing these terrible losses. All of you are in my prayers and I pray a cure comes quickly.
    ~Lisa

    March 30, 2005 at 3:39 pm in reply to: Mom is not responsive #5056
    LisainOk
    Member

    {{{{April}}}}
    So sorry honey. I’m keeping her in my prayers.

    Blessings~Lisa

    March 30, 2005 at 3:37 pm in reply to: Neil #5091
    LisainOk
    Member

    Ditto here as well. Ohhhh Neil…..where are you?!

    March 30, 2005 at 3:36 pm in reply to: Bad News #5099
    LisainOk
    Member

    Praying for you both.

    Blessings~Lisa

    March 29, 2005 at 8:03 pm in reply to: Ron and Barbra #5041
    LisainOk
    Member

    Barbra,
    I am heartbroken for you:( I am so sorry. You will in my prayers.
    ~Lisa

    March 23, 2005 at 1:45 am in reply to: Let's find a Cure… #4944
    LisainOk
    Member

    Oh I am so sorry:( Will be praying for your family. This disease just breaks my heart:(
    ~Lisa

    March 17, 2005 at 3:49 pm in reply to: Questions #4790
    LisainOk
    Member

    Sorry I can’t answer any of your questions but I think Neil writing a book is an excellent idea!!
    ~Lisa laugh

    March 11, 2005 at 2:04 am in reply to: Mds and hereditary? #4698
    LisainOk
    Member

    Doreen,
    Well it could be just as Neil said…that members of the same family have been exposed to the same thing that might have triggered the mds. I honestly don’t know. I begin to question this myself because on my dad’s side his mother had aplastic anemia-they never did discover the cause before she passed, my dad had mds and transferred to leukimia and my dad’s sister had leukimia. His other two sisters both have anemia and diabetes. On my mom’s side, her grandfather and his daughter both passed from leukimia. Now my daughter has ITP and we are looking into a complete workup to see what else if anything she has and what may be causing it. I find it hard to believe that it is coincidence. There has to be some linking factor whether it be environmental or genetic. As for having your son checked, I don’t think I would worry unnecessarily. I have three other children besides the one with ITP but I don’t think I could torture myself with the whatifs. I don’t want to subject them to any of it unless a need arises.

    ~Lisa

    ~Lisa

    March 10, 2005 at 11:09 pm in reply to: Mds and hereditary? #4695
    LisainOk
    Member

    Actually from the research I have done this week I could only find info on 6 known cases of mds being in the same family. Here are a couple of links. This one is about a family with twin girls who both have mds, also the mother and the other sister have it. http://www.caringbridge.org/pa/hannah_madeline And this link talks about abnormal chromosomes as possibly being the cause in Mds. http://www.emedicine.com/ped/topic1526.htm

    Blessings~Lisa

    March 10, 2005 at 9:10 pm in reply to: Another question….. #4680
    LisainOk
    Member

    wow! youchola! Ok just wondering what the difference was. Have definitely heard the two used interchangeably and didn’t really know.

    March 9, 2005 at 5:05 am in reply to: Update on Mom #4387
    LisainOk
    Member

    Praise God for this news!! I bet when she’s feeling better you guys will want to have a BIG party to celebrate huh? Take care.
    Blessings~Lisa

  • Author
    Posts
Viewing 15 posts - 1 through 15 (of 40 total)
1 2 3

Login

Login

Search Forums

Recent Topics

Message Board
Review answers to commonly asked questions or get answers to your questions from an MDS expert
Enter Message Board

CONTACT US

MEMBER OF

Guidestar
Copyright 2014 - 2024 - MDS Foundation. All Rights Reserved