Forum Replies Created
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AuthorPosts
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SandyB
MemberMikes’ and my prayers and good wishes. You will do well, and show us all how its’ done. Good Luck!
MemberMay God Keep you and your family in his care.
MemberThanks Lynette. I appreciate the information and hope you Mom continues to do well.
MemberJerry:
I am so glad to hear that you leaped a hurdle and are doing well again.
Great Idea! I will look into that.
Also would be good for everyone to pass along the letter to Congress found on http://www.fightmds.com in Dennis’name.
Good luck to you.
Member“A Faceless Friend, A Voice in Courage, An Inspiration to All of Us.” You may rest now, knowing you did make a difference here.
MemberJack:
It is a Great Day! We have a 4 month old grandson, who is cuter than you can imagine. Our first!
So glad you are doing well with the Zarnestra.
Mike and I visit his Hemo/Onc. on Monday in Indianapolis. Wants to talk with us about a few options.
Thanks for the update and kiss that beautiful new baby one time for us.
Sandy
MemberPatti:
I believe Dennis belongs and posts at: http://www.acor.org/diseases/BMT/bmt-talk.html
It gives instructions on how to join.
Sandy
MemberGood Morning Jack:
Nice to hear you are doing well with the Zarnestra. As I mentioned, it seems to me that starving this thing to death is on the right track. Keep me posted!
Regards,
SandyMemberHi Jack,
Just curious about how you experience with Zarnestra is going. Hope well
MemberLucy & Family:
Please accept Mike’s and my deepest sympathies.
You are right though, tonight she suffers no more and is back to the self she would want you all to remember.
MemberJack: Please keep us posted on the Zarnestra Trial. I just inquired about that for Mike with Loyola Univ. in Chicago.
I think taking away the “food source” is the best idea yet. It seems as though medications are now being geared more to control than to kill. Did you have any type of “enyzme” test done before starting on Zarnestra? I do not know if there is such a thing but would be interested in knowing if there is. Good Luck!
MemberThat would be: Dr. Alan List, Professor of Oncology and Medicine, and Chief Division of Hematologic Malignancies Hematologic Malignancies at H. Lee Moffitt Cancer Center, Tampa, Florida,
MemberDennis
Mike and I both send our prayers for a speedy recovery. We know you can do it!
Sandy
MemberThanks for asking Gloria. Mike was able to achieve complete remission after one Ara-C & Daunarubicin Chemo round. Strong Stuff. He then had a Consolidation Chemo of just Ara-C.
Unfortunately, his blood counts fell so dramatically, that he contracted an infection and became Septic. Very scary time. Thank God for his survival.
He is still recuperating, but counts are all starting to come up quickly. Our next step is to our Dr. and see what comes next.
How is your husband doing? I hope well.
MemberThanks Suzanne! I will try and contact them tomorrow.
Seems as though the study at Loyola is mainly for those who have not undergone Chemo Therapy, as you had mentioned.
I’ll let you all know how this effort turns out.
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