[Shellie]

Terri, I’m glad to know your husband is doing well. Is he still able to go about a normal day? My father stays in bed nearly all the time. If he’s not in bed then he’s sitting up in his office. He does absolutley nothing else besides walk to the bathroom. He is just so weak. Is it the normal progression of this disorder to be this weak? Is it possible to go from being this bad off to being able to function again?

Alexa, I know what you are saying. Trust me, we have tried everything to get him to understand how important this is. I don’t want him to give up. I believe his fear of hospitals and doctors is just so great that it’s clouding his better judgement. I won’t give up on trying to convince him though. Thank you. PLease take care of yourself. I’ll keep you in my prayers.

[Shellie]

Well as it came as no shock to me. Dad called this morning and (how’s this for logic) claims he is too sick to go to the doctor today! Yes, he’s very ill we all know that. But this is his way of saying he doesn’t want to know what the doctor has to say because it won’t be good. Now, as I said before I don’t know if he has MDS. I’m just trying to get some idea what might be going on with him. I was able to get to the doctor today by myself and get a copy of his lab results but without the BMB I guess we’ll never really know. Here is what was out of whack.

WBC 8.1
RBC 2.64 Low
Hemoglobin 8.9 Low
Hematocrit 27 Low
MCV 102 High
MCH 33.8 almost too high range was up to 34
MCHC 33.1 range went to 36
RDW 17.8 High range went to 15
Platelets 146 kinda low
Neutrophils 73 almost too high range up to 74
Lymphs 13 Low Monocytes 13 range up to 13
Eos 1 on the low side
Baso 0
Neutrophils absolute 5.9
Lymphs absolute 1.1
Monocytes absolute 1.1 High range to 1.0
Bun 30 high
Creatinine 2.1 high Sodium 139 normal
Potassium 5.1 normal
Chloride 110 high range up to 109
calcium 8.4 low

Does any of this jump out at anyone as something that needs to be looked at more closely?

[Shellie]

I agree about his mental state completely. However, at this point it’s impossible. He is very depressed as he cries almost every day. Yet, when we tried to get him on anti-depressants he flat out refused them. He will not take anything at all to help him and refuses the logic that says it could only help. We have trouble getting him to even take a pain pill when he’s crying that his bones are killing him. It defies all logic to me. Why is he making himself suffer so much? We just don’t know what to do. He is totally dependant on us right now and begs for help but won’t accept any. For example when he was having severe shortness of breath and chest pain my mother insisted he take a nitro. The result was him going into a rage saying she was trying to kill him. I don’t think he has that kind of energy anymore as he can barely walk from one room to the next. It’s all so frustrating. When I bring up the fact that he’s very sick and they need to run tests to find out what it is and how it can be treated he says i want him to be sick. Ughh Thank you for listening.

[Shellie]

Hello. Thank you all for the kind words. We are supposed to go to the doctor tomorrow but dad is already trying to get out of going so we’ll see. At this point, as bad as he is I really don’t see anything helping. He wouldn’t give anything a chance to help. He wouldn’t even wear a heart monitor in the hospital after his heart attack, In fact he threw it across the room. Even though it wasn’t hurting him or anything. I can’t imagine him even thinking about going through any treatments. Maybe it’s best that we don’t know. It’s rough just living in the dark all the time wondering what’s going on and if there is anything we can do.

Gina, wow you have been through so much. I hope you are able to find the answers you are seeking as well. I know how hard this is to not know. As helpful as the internet is, it’s sometimes too much information and it all becomes to much to sort out. God Bless you.

Andrea, I really don’t know. They have done blood work and his liver panel was fine. They have also done CT scan of his abdomen so I thought they might see something there. The only thing they have come up with so far concerning his liver is that it is “congested” probably from fluid overload. So i guess they’ve ruled out the liver. Thank you for replying, take care of yourself and your mom.

Thank you Marsha and Terry. No, there has not been a BMB done. I really don’t see dad allowing that to happen. His mental state is reallllly bad right now and he doesn’t seem to want to know. He just wants it all to go away without knowing about it or trying to do anything for it. I think this is the wrong road to take myself. I would fight! I wish I had the Magic pill he’s looking for.

I will try to keep you all updated on his progress if we find anything out. If someone has any clue if this might be something else please let me know.

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