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Marsha
MemberShari,
I recieved cyclosporin (immune suppressent drug) after my BMT. Tho, I could not tolerate it, when it was given orally I kept vomiting, so they switched me to Prograf (tacromyicin). By the way my donor’s name is Shari also spelt the same way what an honorable name. My best wishes to you
Marsha
MemberSandy
It is wonderful to hear from you again. I am doing very well; still have some issues with GVH but I can manage them. I am sorry to hear about your MS issues; I hope that they will now stay at bay. I remember Joe alot and how you were such a strong person at the time. And the stories of little Joey. Hard to believe he is 4 already. Congrats Grandma!! I just learned that my son and his girlfriend are going to have a baby. Life just keeps going in that circle. Glad you are better.
Marsha
MemberI am so sorry to read about John; I pray to God to send Cheri the strength to continue life’s journey. John was a really nice person and had so much to give to people here. He will be missed.
Marsha
MemberDear Vicky,
I am certainly praying for your son’s healthy recovery. I also pray that you and your family be blessed with strength to carry you thru the next days, months, years. My son was in Iraq as well but he was one of the lucky ones who did not get injured; but I believe he is injured in other ways. I pray for all of our young men and women fighting for freedom all over the world. Bless you, Vicky. Marsha
MemberJ. claire
I may get alot of flak about this. When I was dx’d with MDS/MPD CMML in 2/04. I was given options; at that time there wasn’t the medications there are now. I was age 50 like you; I only had fatigue, SOB, elevated WBC and low hgb and platlets. After all consideration I went for the transplant and did not look at statistics at all. I felt that I would never be as strong or healthy as I was at that time. And if I did watch/wait and it had gone into acute stage leukemia I would then have to try to be put into remission; and then transplant. It took until 11/04 before I was able to get an unrelated donor as my siblings did not match. I made my decision because it was the right one for me (I wanted the cure) and I never looked back after I made I have just went forward. Who knows what is right thing to do. That is something only you have to search out the answer to for yourself. I wish you the best in finding the answer that best works for you.
Marsha
MemberDX at 50 with MDS/MPD sub classified as CMML. Had a BMT 11/04 doing well. Marsha
MemberPrayers to you, Jeff, keep up the good fight. Marsha
MemberJimbob,
Just a question about those baby shots; I am headed into my 2nd year after transplant and will be getting re-immunized. What ones did they end up giving to you. Also did you get the new chicken pox one? Will wait for your answer? I am not looking forward to having all those shots again. LOL!! Talk about born again!! LOL Marsha
MemberGloria
You both have been added to my prayer list. God bless, MarshaMemberPamela,
I am almost 2 years out from my BMT; for MDS/MPD subclassified as CMML. I was 50 years old at diagnosis. I did not have a related donor and they didn’t test my mom or my children. This is a very expensive process (to test) and some insurances do not cover the costs. So I think that you need to go to a specialist in MDS like Neil said. I do believe that I was told BMT/SCT are the only cures for this disease but since the time of my diagnosis they have come out with alot of new meds, etc, that help people live long and productive lives without going thru the transplants. I agree do not get alot of your knowledge from the internet, I was told anyone, anywhere can put anything they want on it and it isn’t always up to date or correct. Hope that you can find a good hematologist that will help you understand. And there are many different subclassifications of MDS. One of which it is not cancer (tho treated like it at times) it is a bone marrow failure disease. Wishing you well, Neil was a good source of info for me, he has done alot of research, and is very knowledgeable. Thanks Neil.
MarshaMemberJeff,
Great things come from Nebraska, good luck with everything. Oh, by the way my donor is from Nebraska. Will pray God sends you all the things you need to get thru this trying time. God Bless, MarshaMemberPhyllis,
I am so sorry to learn of Ron’s passing. I pray that you and your family will find the strength and peace to carry on thru the next days, months and years. God Bless, Marsha
MemberTerri,
I have moved Bob to the top of my prayer list. You and Bob have been much support to me and many of us here. I pray that Bob rally’s from this set back. How can one not be scared? I pray that God will grant you the strength and will to get thru this rough time.
Marsha
MemberJim,
I agree with the great caregivers we have. My SO (whom I have been with for 14 years now) has been wonderful and is still wonderful. There is nothing written that could take the place of his love and care for me. We are not married; and that is OK, he has proven his love for me in so many ways. I truly don’t know what I would do. Last weekend, we were traveling from WI to Ne to visit my donor; and I got a flu bug (vomiting and diarrhea) he drove 200 miles back home and took care of me all the way. I did end up in the hospital because of dehydration. But without him I honestly don’t know how I would have made it back. I am better now; and have rescheduled my visit with donor for the 4th of July week. Aren’t our caregivers special people too?? I think Dick was more disappointed that we didn’t succeed in our visit than me. He was looking forward to it. My best wishes to all who are struggling in whatever stage your in.Marsha
MemberCongratulations Billy,
You make us all proud!! Keep the cycle going!!
Marsha
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