MDS is a bone marrow failure disorder
MDS is a blood cancer
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Viewing 2 posts - 181 through 182 (of 182 total)
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  • in reply to: Newbie-Unsure of DX #14870
    Zoe
    Member

    Thank you. I am encouraged that this anemia could stay stable for a long time, even if it is MDS. I think I had this fear that my counts would drop any day. It didn’t help that all the research (I have read it is old, and no longer necesarily accurate)I found gives a prognosis of 8-12 years at best for RA. Now it is just one more of those things in life that could happen, but you don’t go dwelling on. And you have satisfied my curiousity, that really helps (maybe I have a strange mind :^)

    Susi, I am in Logan. I have worked in McArthur in the past. What an interesting town! It always amused me that there were no fast food restuarants in the county, but now they have a Subway. Whoo Hoo, McArthur is growing!

    Zoe

    in reply to: Newbie-Unsure of DX #14867
    Zoe
    Member

    Thank you both. I guess I am driven by a curiousity more than fear (but driven I am :^)I am not too worried about it. I figure if it is MDS, it must be a mild form for my HGB to stay steady for so long. I was just curious if anyone started out this way. Kind of a yes or no question. I think asking questions helps me cope. It keeps me in the intellectual realm. When I stop asking questions, I am scared.

    Jerry, I am on the other side of Columbus. Cleveland would be an all day trip for me. I haven’t really thought about any next steps, because, as I said, I am losing myself in the intellectual. It helps (?) that I have always had an interest in the medical field. Maybe it just makes me more obsessive. I do it with everything–I recently read a novel set in ancient Pompeii. I found myself researching Pompeii, the Roman aquaduct system…Guess that’s just how my brain works, and how I cope with the unknown.

Viewing 2 posts - 181 through 182 (of 182 total)

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