[alexandra7]

Margaret
Here in Romania doctors don’t really take care of you if you don’t give them a fat “tip”(you have to pay them separately although we have health insurance and we pay taxex and everything)And even so they are not to interested in makinng you better they just act with a little more compasion. I personaly started taking care of my self ,Taking decisions after informing my self about the risks and the benefits . I have a friend who is a doctor and he explains some of the things although he is not a hamatologist.What I mean to say is that I can understand you frustration and I am sorry you have to go through such a period.Best wishes to you and have hope.There will be better days
Alexa

[alexandra7]

Hello again and thank you for everything.I found on the page Neil reccomanded something “Acquired sideroblastic anemia may be cured when the condition that causes it is treated or removed.”But so far for me nobody knows why I have it .I did tests both in Romania and Paris but they couldn’t tell me what the cause is nor if I have it because something caused it or I inheretede it.So far I know that in my family there has never been such a case.I would like to know if there is a certain test I should have or if this could have been caused by a Staphylococcus .I starting having problems exactly after having dicovred I had this infection.A class mate had this and I might have took it from her 3 years ago. After the treatment I ‘ve come to discover that when I have a cold or the flue I don’t have high fever any more .But I have the test for Staphylococcus every month and sometimes it reappears. And to answer some of lindajo’s questions I am 21 but I found out about this anaemia 3 years ago at 19 . And yes we have surgate motherhood here.And I thing this is a good ideea that I hadn’t taken into account. I am not yet married but my only wish in life is to have a nice healthy child. Thank you again for the info

[alexandra7]

hello KAte .
It’s the first time i open the mds page after a long time and i’m sorry i have to see so bad news . Ithink the most important thing you did and still do is being next to him in this period. I do not know what to say . The best thing you can do is pray a lot . Alexa

[alexandra7]

Sorry to hear that . My prayers are with you. Alexa

[alexandra7]

it’s a great news that your mom is doing well . What can I say keep up the good work.Alexa

[alexandra7]

I do not mean to let you get the wrong ideea that I’m against doctors or anything -my best friend is a doc and a very good one …but the thing with giving you a period of time to live that is pathetic . If we were all taking in to account the average period for each disease maybe most of us would be dead by now .So keep on hoping . You never know where the miracle comes from. We are hear for you too. I’ll pray that your father gets better .I agree that it’s a terrible disease. I hope someone will find a cure soon .All my best wishes to you and your dad Alexa

[alexandra7]

Oh Barbra !!I am so sorry for the relapse . You had such a good attitude and you should try keeping that up . You are such greate people (I know that because all your posts were special for me). Let’s hope a miricale will happen and the treatment will work . You will be in my prayers. alexa

[alexandra7]

Neil I’m so sorry to hear about your loss and even more terrible is because I was the one to ask about her (assuming that she was still among us). Anyway I’m trying to say that we are all next to you , thinking of you , praying for you and your family . You have always been next to us when it got hard , always ansewring our posts and now it is our turn to try and support you with a few words. I hope your tests will show emprovement . Alexa

[alexandra7]

Hi Kate!!! It’s really very good news that George is at home and he is feeling better. As for the doctors prediction “He was told there , that he has 3 month to 1 year to live” well if they are so sure of it then the rest is in your heands . beyond medicine there is the power of ones self . Keep the good spirit up pray and NEVER let hope go away. George has it in himself to make it better. I’ve heard of people who seriously made their diseses better by keeping their hope and encoureging themselves . I’m talking about people who went over what the docs said and kept on fighting . although it has been a hard way for you I’m sure you will find in yourselves the power to go on fighting . We all know it’s a long way but we are all here to suport you when it gets to hard. I will continue praying for you . Alexa

[alexandra7]

Carrie, that is such a good news . Hang on in there!! Greate that you share it with us . Keep us posted.Alexa

[alexandra7]

Thank u Neil !!
By the way I remember that I ‘ve read some posts last month and you had some problems with your mother . How is she ? And you? I never get the chance to read posts about your health because you always are concerned with the rest of us .(which is why I would like to thank you so very much) Alexa

[alexandra7]

Ohhh how right you are .Among the first ones who wrote to me was Neil offering his help .Thank you Neil. Ron you have wrote such a beautiful letter and impressed me again . As I ‘ve said before I really admire you for the courage you have in facing this horrible disese.I bring a tribute and special thanks to all the ones on this forum who have helped others by sharing their experiences and conforting the ones who were on the edge . I thank all the ones who helped me during this 3 month I ‘ve been on the forum because they’ve helped me understand what was going on. I thank all the good people out there for their advice and concern .I thank this forum for helping me to find a little light in all this . I thank you all for having the patience to read my posts and having the kindness to answer with nice words and good thoughts . I thank you for being my friends . I will pray for you all…Alexa

[alexandra7]

Ok . You have to pull yourself toghether and face this no matter what the results will be . Hope for the best and trust in GOD . Although your father ‘s blasts are growing(as number)his hb is pretty good so try to see the good parts . Ok? I know this must be really hard for you but it has been given to u and you have to take it the way it is . I will be praying for you and your father. ALexa

[alexandra7]

Buna Alice .I am from Bucharest as well. I ‘m using English in case any one else reads . First of all you are not disturbing anyone .The thing is you have to give us more details about your friend .What doctor does your boyf see ? ALexa

[alexandra7]

Fever is no good. But try not to lose hope . For people with MDS fever can harm but you have to wait for the treatment he is having to start working .And most important thing don’t panic !!!I’m sorry I can’t give an advice regarding your dad’s status but I do not know much . Hopefully he will get better soon . Alexa

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