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alexandra7
ParticipantHello Shellie!
I think your father should take more care of himself .This is not right . Maybe it would be good to talk to a hemathologist who specialises in MDS . He should have the BMB as soon as possible. Your father should understand that keeping his health is the most important thing.I mean he must treat what there is to treate before it’s too late and there is no solution left . He should have more tests that maybe would conclde to someting. Maybe if I had gone earlier to the doctor I would have found out earlier that I have Anaemia and they could have given me other things that would have cured it faster an wouldn’t have gotten me to this point .The same thing goes for your father. God be with you and have faith. AlexaParticipantWell from what I can see it’s a good news .Don’t be scared as you’ve said it needs to be done . Good for you. Good luck with everything . God be with you!!! Let us know how it works out!!! Alexa
ParticipantCarrie ,
We are here for you . Sorry you have to go through such dark days. I think most of the people here understand what you are going through .Lots of days with fever is not a good thing in special for people with MDS but keep your hopes .Hopefully they will find out what it is. God help you and your familyParticipantHi Tara !!
I’m only 20 and am aroud your situation . Good for you that you are fighting MDS . That is what I’m trying to do . AlexaParticipantThank u all!!
Well about chemo they started it yesterday . They were pretty afraid to start it because he was very weak . Yesterday he had no platelets (That is terrible)!!Now after chemo he has 1000 platelets -think of that the normal rage should be over 100 000 . The problem is that after the chemo all his body hurts up to the point that he can’t take it . If you would see him you would say that he is on the edge between life and death . He can barelly move . I was so impressed today .It maid me see that I should be happy that what I have is not that hard . I will let his mother know what you’ve all said and I’m sure she will apreciate it.ParticipantI am so very sorry to hear this. But you are so right he is not suffering any more . Now he is among angels watching over you and taking care of you all . May he rest in peace!!!Alexa
ParticipantI so sorry to hear that .I will keep you and your mother in my prayers!!! Alexa
ParticipantHi Marsha !!
I am new around here but I ‘ve read people’s posts asking about u.I was wondering if it went well for you. It’s so great to hear good news . Keep up the good work !!! FAST RECOVERY!!!
AlexaParticipantDear Andrezej,
Are u sure that what you expect is what will really happen. If your father is still standing up maybe you should not be so drastique . Keep into consideration that MDS is a very strange disese and it can take different turnings . I do not know as much as others on this forum but from the number of blasts he can be at a level of risk of 3 on a scale from 1 to 4 .At least this is how I see it. Of course it depends on other factors as well. I Think I read on the net about people who had 24% blasts and if I read about them it must mean they were still alive. And even if the situation was not a good one you shouldn’t leave your head down . Think that your father is a strong person to cope with it all and still work and take care of the house and the old dog . You should be this way too: optimistic and helping him to go through this . You said “He might not live to see the summer” . Well if this will be the real situation then you should not be scared but enjoy the time you have with him as much as you can . It’s cruel but you have to face it. I hope things will go well .Keep us posted . You will be in my prayers AlexaParticipantGreat to hear good news!!
Have a nice “sunshine”!!!
AlexaParticipantHello John!
I’m sorry for your loss . God be with you!!!ALEXAParticipantYour story is really sad! I do not know if you read my posts or not but if you did you should know that I’ve been there and I know what you feel. What I just wanted to say is that in this moments you should try thinking of what is best for him .If the best thing is that he should be up there among angels then try to let him go in peace(I know it sounds terrible for me to say this ).I do not know how to explain what I want to tell you but just know that you will be in my prayers . God be with you Alexa
ParticipantHI!!!
I’m not in any position to give you proffesional advice. I don’t know what the risks are and I don’t know what that miss match means and how dangerous it is. What I would do in that 4 weeks is : I would get as many infos as I can and after that I would put in a balance the advanteges and disavanteges of the disicions that I could take. Of course I understand that there is some risk involved that is why you have to find out how big this risk is if it is worth assuming it .What are the chances that this procedure goes well ? This is what you have to take into consideration. What are the chances that after this you can go back to a normal life?I really would like to hear what your decision will be. You will be in my prayers. ALEXAParticipantHi Sarah!!
Well I’m 20 years old and I’m kind of in the same situation. This forum is great you’ll see you’ll always find someone to confort you when you feel sad or give you advice when you need one or share info about this “MDS”.
AlexaParticipantI’m sorry for this. I hope George will get through this well and will come back home feeling better.Thank you so much for what you wrote to me in your post . Since my first post you have always had good words for me and others have to (so I thank them too ). God be with you !!!
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