MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: Symptoms of Relapse? #49198
    Alicia Johnston

    Thanks for responding and for asking your friend for me. My MDS has relapsed as AML…I found out just a couple of days ago but before that I needed 2 transfusions (blood and platelets), so any questions I had, besides the official diagnosis, were pretty much answered by that.

    Seems that for me, given my previous medical history, and the fact that my initial MDS was therapy related, there aren’t very many options. One positive though is that the relapse happened more than 6 months post-transplant which tends to be a good indicator for a better prognosis (even if the prognosis is still not great). Just numbers anyway, right? 🙂

    At this point, I’m not sure what I am going to do, but it will probably be to start on Azacitidine to see what kind of response I can get and to make my health an even bigger priority than it already is.

    Thanks again,

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