MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Revlimid Neutropenia #63274
    Michele Gaspar
    Participant

    Thanks so much for your information. I met with my heme/onc on Friday and she is not concerned about the neutropenia, given that it is expected in 80 percent of patients within the first 3-5 weeks of beginning Revlimid. I have a CBC scheduled for Friday, continue to feel well and am hoping for the best.

    in reply to: Revlimid Neutropenia #63241
    Michele Gaspar
    Participant

    Hi, Joe, Lisa and Lew,

    I want to thank you for stopping by and providing your personal stories with Revlimid.

    Joe, The Center for Excellence first told me that there was “no consensus” for treatment. So, I had a second opinion with MD Anderson and Dr. Naval Daver there recommended 5 mg of Revlimid for the first month, then an increase to 10 mg. I went back to the Center for Excellence and have been taking 5 mg. I have an appointment with the heme/onc there on Friday, so we’ll see.
    Lisa, I think that the plan going forward is to continue the 5 mg dosing until my next BMB on 7/23. Fingers crossed there.
    Lew, I am sorry that that the medication did not work for you. Right now, the Hgb is holding steady and platelets are still increased. I take 81 mg of aspirin daily and try to stay as active as possible.
    Again, my thanks to each of you for responding!

    Michele

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