Hi, Joe, Lisa and Lew,
I want to thank you for stopping by and providing your personal stories with Revlimid.
Joe, The Center for Excellence first told me that there was “no consensus” for treatment. So, I had a second opinion with MD Anderson and Dr. Naval Daver there recommended 5 mg of Revlimid for the first month, then an increase to 10 mg. I went back to the Center for Excellence and have been taking 5 mg. I have an appointment with the heme/onc there on Friday, so we’ll see.
Lisa, I think that the plan going forward is to continue the 5 mg dosing until my next BMB on 7/23. Fingers crossed there.
Lew, I am sorry that that the medication did not work for you. Right now, the Hgb is holding steady and platelets are still increased. I take 81 mg of aspirin daily and try to stay as active as possible.
Again, my thanks to each of you for responding!
Michele