MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Bone Marrow Biopsy – Pain Levels by Procedure Type #58885
    Bill Corbin
    Participant

    I have had three BMB procedures. The first was in January 2021; the one that confirmed my MDS diagnosis was in Nov 2021. After five cycles of Vidaza injections I had my third BMB in Apr 2022. All three we performed by my Oncologist with lidocaine to anesthetize the soft tissue. The bone penetration and collection of fluid and bone marrow were done manually, using some kind of heavy needle like awl. She used a lot of pressure while using whatever the instrument was that penetrated the bone. Discomfort probably 3, definitely uncomfortable, but still tolerable.

    in reply to: Agent Orange #58207
    Bill Corbin
    Participant

    I am a Vietnam Veteran also. I was diagnosed with MDS in November 2021. I applied to the VA for a disability based on a diagnosis of MDS after having served in Vietnam in 1971-72. My application was based on presumptive Agent Orange exposure. The VA denied my disability application because MDS is not a presumptive disease associated with Agent Orange. The VA informed me that they would reconsider if I could provide scientific proof that Agent Orange can cause MDS. Naturally I can not do that.

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