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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • September 6, 2022 at 12:31 pm in reply to: Iron overload, no blood transfusion #58616
    buddy west
    Participant

    How did you do with the iron chelation? I have been told there are bad side effects. My doc doesn’t seem to worry about the higher iron levels I’m 73

    February 27, 2022 at 2:20 pm in reply to: Luspatercept Reblozyl #57430
    buddy west
    Participant

    Thanks Robin, I’m going to UVA this week to see Dr Keng for my first visit

    February 14, 2022 at 6:55 pm in reply to: Low risk MDS #57322
    buddy west
    Participant

    Thank you Robin, do you get yearly BNB at UVA? You are on wait and see also?

    February 8, 2022 at 10:00 am in reply to: Aranesp #57288
    buddy west
    Participant

    Joe, are you still low risk? Are you wait and see with no meds?

    February 3, 2022 at 9:43 am in reply to: REVLIMID #57257
    buddy west
    Participant

    I am also low risk MDS, on wait and see, do you need to do BMB each year and does Medicare pay?

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Viewing 5 posts - 1 through 5 (of 5 total)

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