I think with MDS you need a second opinion. I was diagnosed in 2016 with MDS. My problem
Was very low platelet count. My red and white cells have been normal over the years. I need to have a hip replacement surgery so my doctor had me come in for a trial platelet transfusion twice and it did nothing to raise my count. I then was put on a steroid and my count shot up. Now I am told I have ITP. When I asked about MDS. my oncologist said well it’s the ITP part of the MDS that is responding to the steroid. How I read it ITP is a separate disease. I don’t think they really understand this disease themselves. They say 40% of people diagnosed with MDS is a mistaken diagnosis for other diseases.
