MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 8 posts - 1 through 8 (of 8 total)
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  • in reply to: INQOVI #58859
    cerbysam
    Participant

    Thank you Marc. Very helpful.

    in reply to: INQOVI #58855
    cerbysam
    Participant

    I may have to go on INQOVI some day. From what I have searched it is over $7,000 per treatment. Will your part D drug coverage pay for this? I am selecting an insurer soon and want to make sure I am covered if it is ever needed. Thanks for all of you help.

    in reply to: Swelling of ankles and feet #58853
    cerbysam
    Participant

    Mine went away as soon as the weather got cooler so not sure it had anything to do with MDS. Never had any pain.

    in reply to: Epogen covered by Medicare part B #58778
    cerbysam
    Participant

    Thankyou Michael. This will make a big difference in what company I go with for part D.

    in reply to: Drugs to teat MDS #56719
    cerbysam
    Participant

    Thanks for all of your help. I was afraid that I had to buy a really really part D coverage but now it looks like Medicare will help with this. Hope I never have to use it. Fortunately I have been stable since diagnosed in 2014. Thanks again for your help.

    in reply to: drugs not covered by insurance #53229
    cerbysam
    Participant

    I would not be eligible for any help so I just hope it does not progress. Diagnosis is low risk with ringed siderblasts. Thanks to all that responded. I am surprised that when you type the drugs into the medicare site that it does not even recognize them.

    in reply to: Shingles vaccine #48818
    cerbysam
    Participant

    Thank you so much for your response. I have had the original vaccine so I hope it works.

    in reply to: Shingles vaccine #48795
    cerbysam
    Participant

    Thank you for the information.

Viewing 8 posts - 1 through 8 (of 8 total)

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