MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: APR246 trial #46362

    My dad was just diagnosed with MDS. Not sure of all the details at this point. I just know he has a tp53 mutation and a partial exon 9 duplication not sure if all other results have come back yet or if he has more issues like that. Not sure risk level yet. 1% blasts we have been told but that did not come from his main hematologist. We have not been able to see her yet due to him being inpatient.He is 70. Anyone else have this mutation or duplication? Not even sure what to expect. He is currently in hospital due to infection to which they cannot figure out what bacteria, fungus, or virus is causing it. He almost did not make it. He is better now lab wise but now is having issues with confusion and lethargy. They stopped voriconazole due to possibility of that med causing the mental status changes but day 4 out, he is still not any better in that area. On cefepime now along with many other meds such as vancomycin. Not really sure what is causing the mental status changes and lethargy that seem pretty severe. Any advice or info would be greatly appreciated. I saw you also had tp53 so I thought maybe you would have knowledge.

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