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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 46 through 60 (of 92 total)
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    Posts
  • in reply to: Back in the hospital #14793
    cthomas555
    Member

    Terri, my thoughts are with you and Bob and I am sending up prayers for the both of you.

    Chris

    in reply to: Clofarabine #14200
    cthomas555
    Member

    Gloria,

    Here is a link that discribes all about Sweet’s…

    http://en.wikipedia.org/wiki/Sweet_syndrome

    Chris

    in reply to: Advice please 80 year old MDS Trenton NJ #14539
    cthomas555
    Member

    According to http://www.drugs.com/cons/Vidaza.html
    Viazda may cause fast heartbeat, irregular heartbeat and heart murmur. Iron overload from blood transfusions can also cause heart problems.

    And, of course it may not be related to any of the above.

    Chris

    in reply to: A Transplantin' we will go #14385
    cthomas555
    Member

    Dennis,

    I’m sending positive thoughts and prayers your way. You can do this.

    Chris

    in reply to: Finished First Round of Vidaza #14009
    cthomas555
    Member

    It is so good to hear good news on the forum. Thanks for sharing it with us.

    Chris

    in reply to: Introduction #14017
    cthomas555
    Member

    Jeff, I had a left total hip replacement successfully in 2003 after I had been diagnosed with MDS seven years and with COPD for four years. They initially thought it was my Rheumatoid Arthritis causing the pain though I had had a fall several months before. It took a while to find a surgeon who was willing to operate. I was in the hospital for a week before one stepped up to take me on. I had a spinal and all went splendidly.

    I hope you’re not in too much pain. I was walking around with a broken hip for several month before the pain became so excruciating that I asked for a pain patch and they took another x-ray in the ER and finally found the break from the fall. With AVN and the difference in our blood counts your circumstances I’m sure are quite different. I am not a transplant patient and on Comfort/Care only.

    Chris

    in reply to: Introduction #14015
    cthomas555
    Member

    Jeff, did you develop the AVN after using Prednisone? Also did you receive the hip replacement?

    It is terrific that you have a matched donor. Good luck with the BMT.

    Chris

    in reply to: time for a break #13870
    cthomas555
    Member

    KWJ,

    I know nothing of “posting emails and “slamming” people and I admit that emotions sometimes do get high and that you find that upsetting for you. As a friendly and concerned suggestion I would recommend that you stay away from discussions of that type and stick with the ones you find more supportive and comforting.

    I’m not try to tell you what you *should* read. I have no more right to do that as you do not have the right to tell me what type of feelings or emotions I can express when I write.

    I wish your dad healing and comfort and I wish you peace.

    Chris

    in reply to: time for a break #13863
    cthomas555
    Member

    I am sadden that a f’n minority feel they have the right dictate to me how to think, feel and what to speak about on this forum.

    I have had Myelodysplastic Syndrome for 11 years and I feel that gives me some rights. Caregivers are not the only ones who suffer as a result of this disease. I have children who suffer as well, but they do not try to shut me down because of their pain.

    I am very disappointed in the members of this forum who do not feel there is space for us all to share views.

    I am ashamed of you few who will not allow others the freedom to oppose your view or who only want to hear from people of like point of views. Hang your heads in shame! And no! I have not finished speaking on the subject. So be damn with you! If you don’t like it…read another topic already.

    Chris

    in reply to: interesting survey #13819
    cthomas555
    Member

    Marla, you seem to get a little confused by some of what is*written* in messages posted here so I won’t confuse you by responding to your messages in the future.

    Be well,

    Chris

    in reply to: interesting survey #13815
    cthomas555
    Member

    Marla,

    My reply was in response to your question. “Is there anything the sick provides for the healthy?”

    It was not presented as a negative or a positive. It is what it is. A fact.

    The care of sick people and the manufacturing of goods for healthcare provide jobs for the healthy population and consume a large percent of the GNP. Is that not a direct response to your question. If not, perhaps you would like to phrase your question differently.

    There is nothing positive about being sick or terminally ill and I would not recommend it for any reason!

    in reply to: time for a break #13859
    cthomas555
    Member

    Patti,

    I am glad you will be able to spend more time with your family and as a caregiver, taking care of your M-I-L. I was reading some of the 28l messages you’ve posted this past year and you’ve earned a break. You must be exhausted with your busy schedule.

    Chris

    in reply to: interesting survey #13810
    cthomas555
    Member

    Marla, I’ve been trying to follow your argument but find it very convoluted so I thought I would try to break it down for me to have a better understanding if you please.

    You say: “So the healthy must pay for the sick. Is there anything the sick provides for the healthy?”

    The sick provide a living known as employment for many, many healthy people. Healthy people are generally the ones hired to take care of the sick.

    The healthcare industry is one of the world’s largest and fastest-growing industries. Consuming over 10 percent of gross domestic product of most developed nations, health care can form an enormous part of a country’s economy. In 2003, health care costs paid to hospitals, doctors, nursing homes, diagnostic laboratories, pharmacies, medical device manufacturers and other components of the health care system, consumed 15.3 percent of the GDP of the United States, the largest of any country in the world. In 2001, for the OECD countries the average was 8.4 percent with the United States (13.9%), Switzerland (10.9%), and Germany (10.7%) being the top three.The healthcare industry includes the delivery of health services by doctors and other allied health providers. Usually such services receive payment from the patient or from the patient’s insurance company; although they may be government-financed (such as the National Health Service in the United Kingdom) or delivered by charities or volunteers, particularly in poorer countries.

    I think you oversimplify the complexity of healthcare. Your argument smacks of libertarianism which is not generally embraced in a democracy.

    Chris

    in reply to: interesting survey #13806
    cthomas555
    Member

    Marla,

    How would you suggest we ‘fix’ this?

    Chris

    in reply to: interesting survey #13801
    cthomas555
    Member

    ????

    Why are people reading this topic if it is upsetting to them?

    There are plenty of other topics to explore or you can even start your own!

    I find it very supportive and informative.

    It’s very rude and irritating to tell other adults to shut up.

    Chris

Viewing 15 posts - 46 through 60 (of 92 total)

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