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Donna Clabaugh
ParticipantTo all patients and caregivers: Life is a gift from above, but death is not a punishment and it is not final. For believers the last breath here will bring the first breath in heaven.
When my husband was diagnosed with a benign neoplasm on his brain stem on our 52 wedding anniversary, his first words to me were: “Please promise to let me go. Don’t hold on.” I don’t understand how it works sometime but I have seen that sometimes a loved ones holding on seems to prolong someones departure. Our son suffered 4 long years with cancer and my husband felt that his efforts and prayers had held on to our son. The very night he prayed and turned our son over to the Father, our son passed in complete peace. For the next 8 years my husband grieved and suffered the loss. Somehow when my husband was diagnosed I knew it was time for him to go be with our son again. This made it possible for me to be prepared to let go. Fortunately the LORD gave us 11 months when the doctors had said he could pass at any given moment. It was a blessing to care for him. I took him to church and doctors visits. We only had to start hospice in the last month of his life.
I pray that all of you, like me that have MDS or MF, your journey through this will be easy and that you will know the Fathers presence.
I pray that all caregivers will have the Fathers peace.
Know that for believers there is a better life waiting for us and an eternity to enjoy it.ParticipantBlessings to you. I lost my husband 5 years ago to another illness and my son to cancer 15 years ago. We used hospice in both cases and they are great. Now I have been diagnosed with both MDS & MF. I have two daughters and they both know my final wishes when that time comes.
I will share this with you. I hope it helps.
As I sat by my husbands bed in his final hours, I was in prayer as he slept. I suddenly felt a hand move into my midsection as I heard the Father whisper to my heart “I am taking that part of you that is him”. I suddenly, after 53 years of marriage, understood like never before that “Two shall become one”
I can’t explain to you how or why but from that moment I had peace. My husband was a believer and I know I will see him again.
I hope you find God’s peace as you grieve. God Bless You.ParticipantShould read LEAK not Link. Sorry
ParticipantJust wanted to say thanks for the support. I have notified my primary that I will not go back to DR. B.
The good news is both the colonoscopy and the EGD found no cancer. Thank you Jesus.
After seeing my primary to get the results she has said that her plan is for the hematologist to always be our first source and whatever he says rules.
I can’t go to MD Anderson (not that I want to) they are not in my insurance network. I really like my hematologist and he is also an oncologist.ParticipantFor seniors, check your insurance and see if they have SilverSneakers benefit. Mine does and it is great. I registered at two of the local gyms that have pools, hot tubs and steam rooms along with all of the exercise equipment. It was totally FREE for me to sign up. I have been recently diagnosed with Myelodysplastic Syndromes & Myelofibrosis with a JAK2 mutation. My doctor has not told me which risk factor I am but the research I have done says that the MF with the JAK2 is more agressive. We have not started any treatment yet, I see him again later this month to decide what treatment we will start. I don’t have enough energy to use the equipemnt but I go and do the water exercise class and sometimes I just go and swim and exercise on my own. I find the hot tube and steam room really help. I have a COPD and a lot of shortness of breath from the anemia. The steam room is like doing a breathing treatment. It helps a lot.
ParticipantParticipantDiane, is it possible to seek a second opinion?
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