MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Blood transfusions #57521
    Kati Simmons

    Karen: Things changed for us very quickly. My husband has been on Azacitidine injections for about three months. He was admitted to the hospital 10 days ago for an infection caused by low blood counts and we were told that he would be in the hospital for two weeks. After 6 days, he was released to home without notice and we were supposed to make an immediate decision about hospice. The doctor at the hospital was frustrated with us for not following his advice and engaging hospice. We needed to give this important decision some thought and talk to our children, etc. The result of this unexpected release was that we came home without any support or medications to help with pain or shortness of breath. We were provided oxygen. I have been caring for him at home, but when I found myself unable to help him with shortness of breath or other pain and issues we finally did reach out to hospice and “fell into line.” Hospice claims they will help arrange blood transfusions, but I have some doubt about that.

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