[David Williams]

Pat, I’d stay off the Revlimid until my hemoglobin dropped below 7 and stayed there. Hemoglobin can bounce around based on an allergic type of anemia called hemolytic anemia. Said differently, having an allergic reaction to a food or a drug can drop your hemoglobin quite a bit a few days before your blood draw and then your hemo bounces back after the allergy has subsided.

[David Williams]

I think your low WBC, low platelets, high MCV, and sky-high monocytes point to congenital dyserythropoietic anemia with autoimmune destruction of WBCs. If I were you, I’d ask my doctor for a 2-week trial of 10mg per day of prednisone to see if the blood parameters will improve. The reason I say this is because it looks like you do have a bit of hyper-immunity going on. If so, low-dose prednisone will tone your immune system which should show a change in your blood parameters. I also think you need an immunologist more than a hemotologists.

[David Williams]

nicole, your numbers don’t look so bad considering you had sepsis which can throw everything upside down. For example, you WBCs seem normal for someone with a likely liver infection.

Your pulse was high because you scared yourself!

You are a victim of your own runaway imagination. Your high RCDW is likely from iron deficiency anemia, which is easy to correct. Your mono count is low which is great. The RBC at 3.07 is not so bad and might even be caused by hemolytic anemia due to a drug you’ve been taking or due to a hyperimmune response caused by a food allergy.

The only thing you need to worry about is how to stop worrying! I think you will be just fine! Look at this way, if there was a serious problem, your doctor would have already admitted you to a hospital

Happy New Year
David

[David Williams]

Hi! I’m new here. I was diagnosed with 5q minus syndrome 5 years ago. EPO worked great for me. But I read that the effects wear off after a year or so. Instead, I decided to save the epo injections until I have I have fewer choices. Said differently, my red cell count is 2.9 and my hemo is 9.4 and feel really good so I just save my epo until i need it more than I do now.

Anyway, I do lots of medical research and hope that some of what I have discovered will help others.

david

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