[eve]

to cathie’s mom

please re read the posts

it is not I who had a chuckle

this disease never has or never will make me chuckle

eve

[eve]

cathie

even those of use who are lucky enough not to have major medical problems take certain precautions when it comes to living – that does not make us a prisoner

don’t bury your head in the sand

good luck
eve

[eve]

besides washing hands make sure you wash all the fruits and vegetables you eat before peeling them – otherwise you will be introducing bacteria under the skin as you cut or peel it

eve

[eve]

dear janet

sorry for your loss and pain

thank you for the information

my girlfriend who is in her 50’s and in good health – she is a runner – had c-diff and was extremely ill – i can only imagine how it must effect someone with a compromised immune system

eve

[eve]

jack

my thoughts and prayers are with you and your family at this most difficult time

eve

[eve]

not much advise except that you must be very careful of infections – not only for patients on vidaza , but all mds patients – any infection can really get out of control fast- if your dad is having trouble eating then let him try the food supplement drinks and he can add ice cream or fruit and make a smoothee out of it – any which way he can to get those calories in him, because the weight loss is not only him not eating, but the body using extra energy to sustain itself due to the mds

if you have any questions feel free to e-mail me

good luck
eve

[eve]

deb

my dad took megestrol(prescription) to help increase his appetite – it helped as long as he took it

good luck
eve

[eve]

my dad was on vidaza for years

eve

[eve]

kirby

so glad things are working well for you and that you are feeling great

continued good health
eve

[eve]

oops the word is confer not confire

eve

[eve]

jack

not answering for S, but my dad saw dr silverman once a month (he is in nyc) and then had a local hematologist that he was in contact with weekly – the 2 doctors would confire when needed

it would have been too taxing for my dad to go into manhattan every week

and besides you need to establish a relationship with a local doctor in case of an emergency or hospitalization

just my 2 cents worth

good luck
eve

[eve]

hi s

who is your dad seeing locally – my dad could not function when his hgb got below 9
i know everyone is different, but 6.7 sounds really low not to have a tx

my dad’s hgb when he had an infection would not rebound unless he had a tx, sometimes it took 2 to get him back on track – but again i say that everyone is different

good luck
eve

[eve]

dear s

if his hgb was so low did he get a red blood cell tx
infections tend to lower the hgb in mds patients

my dad was treated by dr silverman – he is sure to put your dad on the right path of treatment

good luck
eve

[eve]

hi lynn

i charted everyone of my dad’s blood tests so that i could see at a glance if there was any significant change – i divided the chart into

date, wbc, rbc, hgb, hct, plts and then a column for notes

i noted everytime we saw a doctor and the results of that visit, test taken, treatment given

it proved to be a great aid because i had all the information at my finger tips without having to rummage through dozens (maybe hundreds of papers)

i would take a copy of this chart with me to every doctor’s appointment (with any and all doctors) and it would show them at a glance what was happening with my dad’s condition

by all means get copies of every single test you take

if i can be of any further assistance please feel free to e-mail me

good luck
eve

[eve]

zoe

when did you see the doctor – if your fever is still there (anything over 100.3) you should be seen – things can go haywire quickly with an mds patient

good luck
eve

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