MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • November 21, 2022 at 3:37 pm in reply to: CMML #58838
    Gail Ellis
    Participant

    My husband is diagnosed with MDS (5Q) and CLL. He does get transfusions, tried retrocrit (did not work) and now trying Reboysl (has had two shots thus far–not much a an increase in hemoglobin count). He goes to Southwestern in Dallas to meet with a specialist next month. He feels pretty crummy.

    The MDS is not related to previous radiation or chemo.
    He goes to hematologist weekly for blood work.
    ——————
    Infact, we go to same hematologist. I have ET (too many platelets), which has progressed to PV (hemoglobin too high (18.6) and will have a phlebotomy next week…

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