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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 1 through 15 (of 411 total)
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  • in reply to: Leukemia Breakthrough #22432

    gemloyear
    Member

    Hi Sandy, I was able to open the link by clicking on it in his post. It opens with a band playing, perhaps you thought that it was the wrong site? It was from – Health Headlines-November 4- VideoCentre. The news certainly sems promissing. Thanks jeanswear. Ellie

    in reply to: Leg pain and diabetes #22062

    gemloyear
    Member

    nancym, You didn’t mention if she had contacted her Dr. in regard to this.Her symptoms could be from blood clots, one of the side affects of procrit. My husband had leg clots,DVT as a side affect and had to be closely monitored and treated. Sometimes one can feel a warm sensation over the clot areas. She should see her Dr. or get to the ER Ellie

    in reply to: SPAM MESSAGES: PLEASE READ #10948

    gemloyear
    Member

    ButchL, What’s going on, I can’t believe all the spam on the forum now. Can someone please take care of it? 59 items!!! Thanks, Ellie

    in reply to: Product to stop Nasal other bleeding #21623

    gemloyear
    Member

    Hi Ani, The product mentioned most often on this site was Nosebleed QR. This is what we used when needed, it worked very well. Be sure to follow the directions carefully.THere are other new products mentioned on line, but we never tried them. BleedArrest and QikClot. If you have trouble finding Nosebleed Qr.there is a site, where it can be ordered on line, AmericanRX.com price $5.93. I haven’t seen you on the forum lately. I haven’t been on for quite awhile either, I didn’t have use of a computer for a long time.I hope that everything is going well for you and your husband. take care Ellie

    in reply to: SPAM MESSAGES: PLEASE READ #10947

    gemloyear
    Member

    thanks, there are now 2 more .

    in reply to: SPAM MESSAGES: PLEASE READ #10945

    gemloyear
    Member

    Butch, There are at least 8 spam on now !! Help Thanks, Ellie

    in reply to: Ed's lost battle #20720

    gemloyear
    Member

    bety, My sincere condolences.Their loss is difficult to accept even though they are free from suffering and are with God.
    My God bless you and your family.Ellie

    in reply to: Old name "lost" #20217

    gemloyear
    Member

    Gai, Please know that you are in my thoughts and prayers.
    God Bless, Ellie

    in reply to: going to the doc…say a prayer.. #19359

    gemloyear
    Member

    Hi Lost, I found your old post. I’d like to see if it will show up. I’m sorry to read that Pierre passed on. It was great that he was able to get that moose.I am praying for you and your family.May you find comfort in knowing that he is now at peace.
    God Bless, Ellie

    in reply to: Clorfarabine Clinical Trial Began 1/7 #20017

    gemloyear
    Member

    Hi Cheryl, Your Dad’s Clofarabine trial sounds very promising.I’m praying for a successful treatment for him.
    Take care, Ellie

    in reply to: My Dad #18430

    gemloyear
    Member

    Katie, Please know that you and your family are in my thoughts and prayers.
    God Bless,Ellie

    in reply to: Rash (Welts) after Dacogen #20123

    gemloyear
    Member

    Hi Jen, Shingles is a Herpes zoster virus. When one has chicken pox the virus stays dormant in the body forever and then can come out later in life as shingles when ones immune system is lowered by another illness. I spoke to a cancer researcher at the University of Minn. years ago and she stated that they were trying to figure out which came first the cancer or the herpes zoster.The cream I mentioned is a steriod. One thing that I learned with my husband’s illness is that the low immune system leaves a patient open to many skin infections. He had at least 5,most were painful,itchy and sore! I hope that I explained this well enough as I am going strictly by memory.
    Ellie

    in reply to: Rash (Welts) after Dacogen #20119

    gemloyear
    Member

    Hi Heather, I just read your other post. I hadn’t thought of shingles but Poppy may have something there. My sister-in-law broke out with shingles when she was taking chemo for lymphoma. There is a lotion or cream which relieves the itchiness,
    prescription Triamcinolone, it works really well.
    Ellie

    in reply to: Rash (Welts) after Dacogen #20118

    gemloyear
    Member

    Hi daughter, It seems like an allergic reaction .My husband never took dacogen but did have a severe reaction to antibiotics, welts and itch,which soon covered his entire body. Prednisone is sometimes given for allergies, and also prescription benedryl. Watch for swelling, especially throat and ears (edema). If this occurs get him to the ER. If he still has the welts and itch tomorrow contact his Dr., be a pest if you need to.
    Good luck, Ellie

    in reply to: Radiation of the speen #19957

    gemloyear
    Member

    Hi Jack, I do find your posts interesting, even though I haven’t responded to them. I so wish that my husband could have had radiation on his spleen instead of a spenectomy. He had the surgery before his ITP evolved to MDS and then AML. It seems that was when he began the downword spiral. As a result of the surgery he had a brain bleed (stroke) a short time later and then an incisional hernia. If he had not been such a strong man the surgery would have killed him. I think you were very fortunate to have chose the radiation therapy.By comparison I think that you are doing surprising well. Even though we lost our battle I do appreciate reading of others who are suceeding with their choice of treatments, ie. the zarnestra as well. By the way Terri’s husband Bob also chose radiation for his spleen, she hasn’t posted much lately,so perhaps she hasn’t seen your posts. I’m glad that you have responded so well,wishing you the best.
    Ellie

    Glen 72_ Dx RA, ITP,2002,COPD 2002,MDS 2004, AML 2005,Passed Oct.05,2006 age77

Viewing 15 posts - 1 through 15 (of 411 total)

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