[liz]

I am diagnosed with mds 5q- and will start revlimid next month. My hg and rbc were ok for first year but have dropped recently. I have an appointment in 3 weeks with the oncologist who has said starting the drug is my decision, so I am gathering information. One thing I noticed is that some people have immediate results and stop using revlimid while others continue until it doesn’t work for them. And I also noticed the cost, it appears that I with my medicare coverage will have about a $8,000 a month copay. So I need to investigate to get assistance with that. If you have any comments on revlimid “curing” your mds or on how to get the cost lowered I would appreciate it.
thank you

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