MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • July 23, 2018 at 2:01 am in reply to: Procrit then Vidaza-nervous #36938
    Deb Richards
    Participant

    I had nonhodgkins lymphoma. Dr didn’t mention a transfusion.. maybe because her plan is Vidaza and if I start that I can continue Procrit, I think. Tereze, I hope it all works out for you. The SCT was a horrendous deal. I hope you have a good support system

    July 22, 2018 at 11:00 am in reply to: Procrit then Vidaza-nervous #36934
    Deb Richards
    Participant

    The whole SCT process was horrendous even with a wonderful staff there. And abt a year to get normal values to my blood cells and then get MDS. SCT isn’t a cure all. Unfortunately, I might not be back needing treatments again so soon if I had waited to just be cancer free for awhile first. I wish I’d stopped and thought about it before jumping in but I understand you need that for the cure. Did you take the Vidaza?

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