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Janet KlagholzParticipant
Kathie,
Thank you so much for your response, insight and good wishes.
Love and Prayers,
JanetJanet KlagholzParticipantMarcella,
Just an early morning “shout out” to say I hope you and your Mother have a good day. You are in my thoughts and prayers for strength and finding times of peace for yourself during each day. Take care of YOU too.
Love and Prayers,
JanetJanet KlagholzParticipantMy Husband also has that combination MDS (dx 2020) CHF (dx2021). At this point we are told that his hemoglobin is not low enough for Transfusions. They have him on Lasix for the CHF and now his sodium is going low (had been on sodium tablets daily since chemo in 2010) and now they took him off because of the CHF. It seems like everything is heading in the wrong direction. His cardiologist has referred him to a Nephrologist and we are hoping for some answers there. Sorry I can’t help you more with your questions, but I thought I would at least let you know you aren’t alone dealing with that combination.
Take care.
Love and Prayers,
JanetJanet KlagholzParticipantThanks for your reply Stacy,
When he was in the hospital it was determined that there was damage to his heart, his heart attack happened on a Friday night. They were scheduled to do a heart cath. on Monday but then his hemoglobin dropped so significantly (he was on a lot of heparin at the time because of the heart attack). They determined it was too risky to do the heart cath and the GI Dr stepped in and did an endoscopy. That was when they found the bleeding ulcers and fixed them. He was put on additional meds for the ulcers and yes for his heart too. He had a follow up with his cardiologist the week after he was released and he wanted to make sure the ulcers were healed before he did anything else. He sees his cardiologist again this week. As a little more background, he had Bypass surgery in 2016 (luckily he did not have a heart attack prior to that) then in 2018 he did have a mild heart attack and luckily there was no damage to his heart at that point and stents were put in where the blockages were. It is very possible his extreme exhaustion is heart related, and even medication related. He has been such a fighter over the past 20 years, when he was diagnosed with his first cancer. Since then there have been 8 other cancers but honestly he was feeling good prior to this happening in July. Since his MDS diagnosis in January it is just a new situation to try to figure out how it is affecting his health.
I truly appreciate all your insight and caring.
JanetJanet KlagholzParticipantThanks for your reply Erin. Yes, his hemoglobin level is back to where it was prior to this. His GI Doc said he feels the ulcers have healed. He has an appointment with his Cardiologist this week and hopefully that will shed some light. I just don’t know at this point if it is his heart or the MDS. Luckily all his Drs communicate with each other so hopefully they will figure it out.
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